From: bounce-scoliosis To: scoliosis-digest@ai.mit.edu Subject: scoliosis V1 #1012 Reply-To: Errors-To: bounce-scoliosis Precedence: bulk scoliosis Saturday, 14 November 1998 Volume 01 : Number 1012 Today's subjects for scoliosis, scoliosis-medical, scoliosis-child and scoliosis-teens: RE: Pregnancy & curvature [Sharon Kay Miller ] Re: Hi [BellaVani@aol.com] RE: Sanet's 4 weeks post-op [Marla Dowdeswell ] Re: talking with other patients from a practice [Bogima@aol.com] Re: Re: Re: Hi [Fmi17@aol.com] Post Op Joint Pain ["Robin Murphy" ] Re: Sanet's 4 weeks post-op [Linda Racine ] Re: Post Op Joint Pain [Linda Racine ] Re: Sanet's 4 weeks post-op [R.N.A.@worldnet.att.net] [Fwd: talking with other patients from a practice] [Elizabeth Mina ] Re: Posts off subject [hmc ] To Leah [Raquel Ruiz ] Re: I need help [Smmersun@aol.com] Re: to Elise [emmenard@mindspring.com (Erica Menard)] Re: question on pregnancy [Spicy419@aol.com] Re: Posts off subject [Leah640@aol.com] Re: I need help [VSlaybaugh@aol.com] Re: I need help [HugEBear36@aol.com] Re: I need help [hmc ] Re: pregnancy and scoli [RAHannig00@aol.com] Re: Hi [richa@softcom.net] Re: Sanet's 4 weeks post-op ["A & S Lanser" ] Re: Sanet's 4 weeks post-op [Bogima@aol.com] Re: Post Op Joint Pain [Bogima@aol.com] Re: Post Op Joint Pain [Bogima@aol.com] Re: Pain Clinics [Spicy419@aol.com] Re: Post Op Joint Pain ["A & S Lanser" ] Re: Posts off subject [Pegclay123@aol.com] ---------------------------------------------------------------------- From: Sharon Kay Miller Date: Fri, 13 Nov 1998 10:05:23 +0100 Subject: RE: Pregnancy & curvature I only found out about my scoliosis when I was an adult (31 or so), and this was diagnosed as a 'oh, by the way' issue when I was having some back aches and went to the chiropractor. I didn't know what the implications were, and the chiropractor didn't tell me at the time, but since my back aches didn't really go away, I decided to monitor it as much as I could. I can only remember the first time I heard the chiropractor say scoliosis, he said I had a 'slight' scoliosis. The second time I was X-rayed, I remember the measurements being 14 degrees. The third time x-rayed, it was 19 degrees - perhaps 3 years later. I became pregnant at 39, and had no problems with my back during pregnancy, although in the last trimester, I had pelvic pain and it was pretty bad - like a pinched nerve when I walked. After the delivery of my daughter, I felt completely disassembled. I had terrible foot pain, and creaky/cracky joints, and a very weak back. I had extra weight (about 20 lbs.) which I believe contributed to the apparent 'worsening' of my curve. The next time I got an x-ray, the measurement was 37 degrees. I have been to many specialists, and most say this is a 'natural' degradation. They have told me that as an adult with scoliosis you can expect a degradation of 1 to 1.5 degrees annually. I have only recently (and partially because of the participation in this list) become aware of the fact that my daily living habits can probably affect the scoliosis negatively (I don't think we can reverse it, unfortunately). But I believe that, for example, long-term smoking habits and being overweight can negatively influence, that is, increase the rate of degradation of your scoliosis. Depending on your age and your condition, pregnancy may also influence it, and being overweight probably also does. It is something we always have to work on - keeping as fit as possible so that the scoliosis is minimally affected. I sadly got smart a little bit too late! (But better late than never:-)) Sharon > ---------- > From: Elise R. Jaffe[SMTP:elise_j@compuserve.com] > Sent: Thursday, November 12, 1998 6:55 PM > ... ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: KKRUGER@ddiworld.com (KKRUGER) Date: Fri, 13 Nov 1998 09:49:52 +0000 Subject: to Carla Hi Carla, Thanks for the reply--that is encouraging! I have seen you on here many times before but I get people mixed up--are you fused or did you wear a brace? As far as epidurals go--ugh! I never thought about that. Hope I have the option. I'm brave when I know I have a way out!!! Thanks, kat ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: KKRUGER@ddiworld.com (KKRUGER) Date: Fri, 13 Nov 1998 09:53:27 +0000 Subject: to Elise Hi Elise, Thanks for the info! That's interesting that the doctor didn't attribute your changes to your pregnancies. Have you had surgery or did you ever wear a brace? (Is everyone sick of this question yet?!?! I'm on a mission here, sorry! My boyfriend and I are in possible marriage/child negotiations sort of..... :) ) kat ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Leah640@aol.com Date: Fri, 13 Nov 1998 10:19:44 EST Subject: Re: talking with other patients from a practice In a message dated 11/13/98 12:51:45 AM Eastern Standard Time, Pegclay123@aol.com writes: > But as a doctor he must realize the value of proper nutrition for any child - - > one with scoliosis or not. If you have a concern and want to have your child > tested and have nutritional counseling he should support that and offer it > regardless if he believes it will be a fix all for scoliosis. I don't think > any of us feel that it is the entire cure, just that it makes good sense to > check and make sure you have every thing going in your favor that you > possibly > ... Very well said. And just to add, nutritian (spelling, sorry) is important for all children. My ped. is very big on it. Part of the wellness check is asking about their diet, likes and dislikes. He has tried in vein to get my daughter to eat her veggies, she now will eat some but it is still a fight. (she is 7) Nutritian is important for the whole child, not only their spine. I am lucky with my ped, and therefore when we moved 2 1/2 years ago I continue to take my kids there, even though it is a shlep and a half. I have the number of a local ped in case of a real emergancy but our Ped is one of those that will be avalable 24 hours a day, 7 days a week if needed. He took in a partner several years ago that we love as well. They both are willing to listen to the parent's concerns, I mean really listen. I needed to get a hold of them once at 130 am on a sat. night. My son was very ill, well he called me back inless then a minute after calling his service. This wonderful Dr. gave me options on the phone for treating my son, who had a bad reaction to an antibotic and had become so dehydrated, in hours (he was nine months old)that his soft spot had caved in, and his tears dried up. This wonderful Dr. told me how to treat him at home, or I could take him to the hospital, or to HIS home for care. That is a caring Doctor. He also went to his office at 8 am on Sunday morning to see my son. ( I chose to try to rehydrate him at home.) This Dr. is one of the best. They are watching my children very carefully for Scoliosis, and they have ordered tests when I have asked about them, regardless if they feel it is possable. My son has ADD and I had read about thyroid problems that have the same symtoms as add, he had the test done, even though he felt it was a very long shot as Geoff had no symtoms of thyroid problems, it was neg. He did a lead screening at the same time. I was lucky to find them, they always research any concerns that I bring up to them and get back to me right away. Sorry this went on so long, I degreesed alot, but my point is still this. Nutrition is important, so is a that listens to you and your child, even if they do not agree they should listen to your view and take you seriosly. Leah ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: NBiagini@aol.com Date: Fri, 13 Nov 1998 10:53:31 EST Subject: Re: Posts off subject In a message dated 11/12/98 7:06:04 PM Pacific Standard Time, Pegclay123@aol.com writes: << RE: NCC-post off subject >> seems a good idea...Nancy ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Logan Zuber" Date: Fri, 13 Nov 1998 11:16:55 -0500 Subject: I need help hello, I was wondering if any of you could lead me to some info on scoleosis. I'm doing a report on it for my Senior Human Body class. I picked it because my younger brother has scoleosis. If you could possibly send me a list of good internet sites i would appreciate it greatly. thanks, Logan Zuber ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: BellaVani@aol.com Date: Fri, 13 Nov 1998 01:29:56 EST Subject: Re: Hi Now that you mention it within the past couple of weeks i've experianced pain in my shoulder too. My ribs also hurt sometimes. I thought it was just pleaurisy (probably misspelled). Can you guys write to me and tell me if you have the same symptoms it's kind of starting to worry me. Thanks a bunch. Vanessa For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Marla Dowdeswell Date: Fri, 13 Nov 1998 04:10:40 -0600 Subject: RE: Sanet's 4 weeks post-op - ------ =_NextPart_000_01BE0EBC.A61FE060 Content-Type: text/plain; charset="us-ascii" Content-Transfer-Encoding: quoted-printable Linda and others, I don't think that we should be criticizing Sanet for working too hard. = I don't think that she is. She is excited about what she is able to do = and wants to share that information with us. I am sure that there are a = million things that she cannot do, but she has not described them. Myself and other recent surgery people have posted a lot our = experiences. On a good day we describe the things that we can do and we = are happy that we are able to do these things. Then we are criticized = for doing to many activities. But we haven't described the whole = picture because there are many things that we cannot do, and we know = enough not to do them. On a bad day we might describe some difficulty that we are having, or = pain that we are experiencing. Then people think that we are down all = the time, depressed and miserable. Again we have not described the = whole picture, we just wanted to share that bit of information. I know that we are all friendly here and the advice is well-meant. But = I don't think that we should be so quick to judge a person based on the = minimal information that is provided. 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Bonnie ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Fmi17@aol.com Date: Fri, 13 Nov 1998 10:27:57 EST Subject: Re: Re: Re: Hi Yeah, i have shoulder pain too, and i have no idea what triggers them For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Robin Murphy" Date: Fri, 13 Nov 1998 10:22:10 -0600 Subject: Post Op Joint Pain Has anyone had any problems with Post Op pain in their joints (elbows, hands, hips, knees, etc). In the past when I had problems with some drugs one of the side-effects was joint pain. In the last two weeks, I have come to feel like a little old lady with arthritis everywhere. Could this be a reaction to all the new instrumentation in my body? Does anyone know what the symptoms are for being allergic to the instrumentation? I asked the doctor about this before the surgery because I have allergies to some metals. He told me not to worry about it. I saw somewhere the mention of possible allergic reaction to the instrumentation. But I don't think it was on this site. It has been raining for the last week and I miss my walks. Otherwise I get more mobile all the time (even with the joint pain). I had a bout with some sort of virus and throwing up became an art. Sort of like the coughing exercises the Physical Theraphist put you through in the hospital right after the surgery. No fun!!! I snuck out the other morning and made a run to Wal-Mart. I discovered I am not quite ready for trips on my own yet. My kids had a good time chewing me out and took away my car keys!! Oh well. :) At least they care. I just wanted to see what it would be like to get out and around. I like the idea of the pictures to take to work. I am going to get a copy of one of the x-rays at my 6 week visit and take it with me when I start back to work. I will hang it in my cubicle as a reminder. I had a hard enough time with anyone believing me when I was in so much pain before the surgery. Maybe this will shut them up. Sigh. I have not taken any pain pills and I see that I am getting grouchy. Robin ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Linda Racine Date: Fri, 13 Nov 1998 08:36:35 -0800 Subject: Re: Sanet's 4 weeks post-op Marla... How strange to me, that you took my advice to Sanet as criticism. I seriosly doubt that her doctor's instructions included cleaning the house if she felt like it. During the first few months post-op, hooks can easily be dislodged and screws can come loose. I would hate for Sanet, or anyone else, to have that happen. Regards, Linda ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Linda Racine Date: Fri, 13 Nov 1998 08:39:13 -0800 Subject: Re: Post Op Joint Pain Robin... Your symptoms are, I believe, much more likely to be caused by the fact that you're spending a lot of time laying down, and are not as active as you were pre-surgery. My entire body was very sore for several months after surgery. I also found that I had far less energy than normal for at least the first year post-op. Regards, Linda ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: R.N.A.@worldnet.att.net Date: Fri, 13 Nov 1998 13:20:33 +0000 Subject: Re: Sanet's 4 weeks post-op Marla- No one was criticizing Sanet. The advice was well intended and caring. One thing that I have discovered about this list is that there is great concern and a wealth of information shared by all. Many of the people on this list have learned from past experiences, or are quite knowledgeable about certain situations and that should certainly be passed on. I believe we all wish those planning on surgery and recovering from surgery much success. I for one look forward to receiving all advice--solicited and unsolicited-from members of this list. ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Elizabeth Mina Date: Fri, 13 Nov 1998 13:22:15 -0500 Subject: [Fwd: talking with other patients from a practice] This is a multi-part message in MIME format. - --------------DF0A6275C2F8712EB70F3A42 Content-Type: text/plain; charset=us-ascii; x-mac-type="54455854"; x-mac-creator="4D4F5353" Content-Transfer-Encoding: 7bit Since Rich asked, I'm coming out with what happened at my Dr. Kostuik appointment. I guess people on this list should know about these kinds of things. Eliz. - --------------DF0A6275C2F8712EB70F3A42 Content-Type: message/rfc822 Content-Transfer-Encoding: 7bit Content-Disposition: inline Message-ID: <364C7648.71AE695F@planet.net> Date: Fri, 13 Nov 1998 13:11:36 -0500 From: Elizabeth Mina Reply-To: emina@planet.net X-Mailer: Mozilla 4.05 (Macintosh; I; PPC) MIME-Version: 1.0 To: Richard Lethin Subject: Re: talking with other patients from a practice References: <364B049B.E815FC1C@reservoir.com> Content-Type: text/plain; charset=us-ascii; x-mac-type="54455854"; x-mac-creator="4D4F5353" Content-Transfer-Encoding: 7bit Dear Rich, > >Dr. Kostuik even yelled at me when I told him I was a > >member of this Scoliosis Mailing List for support and made it clear he > didn't > ... I really wasn't going to go into my very negative second appointment with Dr. Kostuik to get his surgery plan for me on this List, but since I've been asked, I'll give a brief synopsis. After I had seen him in August, I had pretty well made up my mind that he would be my surgeon because he seemed technically on top of everything (even though his attitude was very authoritarian) and Johns Hopkins is also a very impressive and well-organized facility. This is despite the fact that he told me NOT to seek any other opinions--apparently a common tactic of his and one I naturally disobeyed. I'm not the idiot I was in 1990 when I didn't get a second opinion on my fusion extension to the sacrum, which I know now was a very bad decision given my problems at the time. When Dr. Kostuik came in to see me at this second appointment, his staff had apparently got me confused with somebody else who had called earlier that day & told him I had cancelled my appointment. So he started it off by basically accusing me of lying--making a call to cancel my appointment in the midst of my 4-hour drive from NJ!--and everything went downhill from there. First, he didn't want to answer any questions with specifics. For example, when I asked what rods he intended to use, he just said there were "100s of kinds" and refused to tell me details. He berated me for "getting information from the Internet" and talking to other Scoliosis patients in spinal fusion failure. When I asked if he thought balancing my hips in the biplanar osteotomy would relieve the pain in my S-I joints that has kept me from sitting for 15 years, he started in ridiculing my pain and made the remark that 50% of the population had the same kind of pain I was experiencing. (Yeah, right--in the knees, hips, upper back, arms, hands, and neck???) He even made an off-handed remark that he could do great things, but he couldn't do anything about my hair, with the implication that he didn't like how I was wearing it. Then after I expressed some reservations about the surgery because of fear of another operation, he started yelling that perhaps I was not a good candidate for revision and he didn't want to operate on someone who was afraid. My husband, who thankfully was there with me, found the whole thing unbelievable and said if he hadn't been with me, he never would have believed a doctor--any doctor--could have behaved that way to a patient. We left in an extremely depressed state. Naturally, I will not now have surgery with Dr. Kostuik and have chosen Dr. Boachie, in whom I have a much better relationship. Yes, Allison is right when she says these surgeons are working for US and should treat us with respect and at least a degree of compassion. In any case, the whole Kostuik thing threw me for such a loop and created so much anxiety in me about revision surgery that my local spinal surgeon recommended I get better prepared mentally for it by seeing a medical psychologist. I also have an appointment with a pain control team next week with the recommendation that I go on antidepressants/antianxiety medication, which is something I've tried HARD to avoid. I don't think any of this would have happened had I not been so badly treated by Dr. Kostuik. I had felt FULLY prepared for the revision and was even looking forward to it!! Unfortunately, I know I am not the only one this sort of thing has happened to, because I got emails from some other patients on this List who had similar experiences with Kostuik, Bradford & others. I guess now we know why Dr. Kostuik didn't want me talking to any of his other patients! It is a shame that Adults with Scoliosis are often treated so badly by the surgeons who are supposed to be amongst the best in the field for complicated cases. Meanwhile, we're caught between a rock and a hard place having to decide whether to surrender our bodies to the knives of these hardened doctors. Elizabeth - --------------DF0A6275C2F8712EB70F3A42-- ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Alyssa Aston Date: Fri, 13 Nov 1998 12:22:29 -0600 Subject: Re: talking with other patients from a practice Hi Bonnie, Iatrogenic means caused by medical treatment. The origin is from the Greek iatros for physician and genic meaning produced or generated. (I'm fascinated by the derivation and evolution of language.) For example, flatback is an iatrogenic condition. I had a neurological complication as well as flatback, and developed chronic pain within a few months of my fusion. I ended up having three surgeries, and a fourth has been recommended. The complications I could accept. It is what I consider deceit by the surgeon concerning my long term prognosis that primarily causes my lingering anger. The reason I consider it deceit is the story I was told at 18 changed dramatically years later. At 18 I was told this would be resolved and not to compromise my ambitions as I'd be able to pursue any career I wanted. There was no hint that these problems would be life long. Years later, I was told matter of factly that these problems are due to the spinal cord complication discovered when I was 15 and permanent. If he'd just told me the truth at 18, I wouldn't be nearly as angry (if at all). I liked him and trusted him as a teenager. I make mistakes, consequently I don't beat up anyone for that. But I wouldn't deceive anyone about my error, and I'd do my best to be accountable and minimize the impact on the other person. That's just plain being honorable. I don't think all doctors are bad people. The orthopod that I go to currently is one of the most decent people I've ever known. I count among my good friends a physician. But this experience has caused me to be very cognizant of a physician's motivation. Alyssa Bogima@aol.com wrote: > > In a message dated 98-11-12 18:59:11 EST, you write: > > ... ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Leah640@aol.com Date: Fri, 13 Nov 1998 14:40:28 EST Subject: Re: to Elise, to Kat In a message dated 11/13/98 10:47:14 AM Eastern Standard Time, KKRUGER@ddiworld.com writes: > (Is everyone sick of this question yet?!?! I'm on a mission here, > sorry! My boyfriend and I are in possible marriage/child negotiations > sort of..... :) ) > ... change your spine let me just add my own humble opioion, I think it would be worth it. I Would have done it anyway, even if I thought it would have effected my spine. Being fusied, I had been told no more than 3 pregnancies. I have 2 wonderful healthy kids and am happy I did. It may have ( I will never know) increased my pain levels but even if that was what made it worse it was worth it. I would never give up the chance to be a mom. Leah ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: hmc Date: Fri, 13 Nov 1998 14:31:05 -0500 Subject: Re: talking with other patients from a practice Leah -- What a wonderful pediatrician you have! There should be many more like him in all fields, not just Pediatrics (why do most of the nice guys go into Peds and we get so many egomaniacs for surgeons?!! Hazard of the job, I guess:*) - --hmc. ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: hmc Date: Fri, 13 Nov 1998 14:46:17 -0500 Subject: Re: I need help This is a multi-part message in MIME format. - --------------4B8131924DF4 Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit Logan: Here's a Starter List for you. I'm working on a PowerMac, so if you are on an IBM-comp, you may have trouble opening it (if so, let me know). It is a Netscape document. The best thing that I found to do is to find a good site, and just start bookmarking and following links for hours at a time. It'll take you a while... If you are doing your project to find out info for your little brother (good for you!), it might help you to know whether his scoliosis is congenital (cause known, like spinal cord problems or vertebra malformation) or idiopathic (cause unknown). Good luck! Let me know if you need more sites! - --hmc. p.s. I don't know if I have it bookmarked, but look up the National Scoliosis Foundation's site. They will probably be of more use to you (you can call them fot info pamphlets, etc.) than the medical abstract search sites (the first few listed in the document I forwarded: Grateful Med, Medline, etc.) - --------------4B8131924DF4 Content-Type: text/html; charset=us-ascii; x-mac-type="54455854"; x-mac-creator="4D4F5353"; name="Medical Sites" Content-Transfer-Encoding: 7bit Content-Description: Netscape Navigatorª 3.01 Document Content-Disposition: inline; filename="Medical Sites" Content-Base: "file:///Macintosh%20HD/Desktop%20Folde r/Medical%20Sites" hmc's Bookmarks

hmc's Bookmarks

Apple Web Sites

Apple Computer
Apple Internet Connection Kit
Apple Education
Apple Higher Education: The Apple Virtual Campus
Apple Solutions
Apple Research Laboratories
Apple Developer World
Mac OS Software and Hardware Guide

Customer Support

Apple World Wide Technical Support
Apple Support and Information Web
Guy Kawasaki's Evangelist

Software Developers

Adobe Systems
Aladdin Systems
Claris
Farallon
Fetch
MacPing
Macromedia
Netscape
NCSA Telnet
Onbase Technology
Progressive Networks

Download Support

Sites and Support for programs I have downloaded

Mirabilis LTD. - ICQ Site Guide

Searching On The Web

Search Engines - My Virtual Reference Desk - My Search Engines
My Yahoo! front page
Lycos Personal Guide
My Excite Channel

Multimedia Sites

Apple Multimedia Program
QuickTime Continuum
QuickTime Conferencing
QuickTime Live
QuickTime VR
RealAudio Guide
Shockwave Guide

Medical Sites

Internet Grateful Med V2.6.1
Welcome to PubMed
Medical Matrix
Wheeless' Textbook of Orthopaedics, scoli menu
AdultScoliosis Links
Scoli. Explanation, with diagrams
ORTHOSPINE.COM (Spine - Scoliosis - Back Pain)
Orthopedics Today: Online Articles
Chronic Pain Support Group
(ICQ chat sessions scheduled from here)

Personal, etc.etc.etc.

Blue Mountain Arts' Electronic Greeting Cards
Learn2.com - The ability utility
CatalogFinder - Catalogs, Online Shopping, Online Catalogs
Obvious Moose!
The Gargonia Jones Page

OURPLACE
Login - Existing Application

- --------------4B8131924DF4-- ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: hmc Date: Fri, 13 Nov 1998 14:49:33 -0500 Subject: Re: Posts off subject Ok, so should we use NCC or OT? Rich, is there an official procedure for this? When we decide, could it be added to the FAQ's on the Scoli. Mailing List webpage? That is, of course, assuming that we think it's a good idea. Personally, I like it, and think it would cut down on some irate postings! Anyone out there got an opinion? - --hmc. ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Raquel Ruiz Date: Fri, 13 Nov 1998 21:46:44 +0100 Subject: To Leah Well said, Leah!! I totally agree with you. I Have 2 wonderful children ( 4 and 3) and although my spine got much worse after my son's birth I don't regret it a single bit. IT IS definitely worth it... By the way, you sent us (a while ago) an article on "ATTITUDE" I found marvellous, but for some reason I can't find it anymore (I might have erased it by mistake) Could you send it again please?? If you don't want to send it again to the mailing list, please e-mail me privately: ruiz@dataway.ch I find you all folks GREAT, I'm getting the feeling I've known you for years, reading your messages night after night (here in Europe). THANKS for everything Raquel Raquel Ruiz Berset - Traductora Telefono: 01 / 364 08 55 Faxito: 01 / 364 08 56 Correo electronico: ruiz@dataway.ch ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Smmersun@aol.com Date: Fri, 13 Nov 1998 16:33:49 EST Subject: Re: I need help Do you have to have interviews? Do you need pamphlets? What exactly is ti that you want? Alexia ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: emmenard@mindspring.com (Erica Menard) Date: Fri, 13 Nov 1998 17:13:50 -0500 (EST) Subject: Re: to Elise Kat -- I have had two children. After my first child was born, I was x-rayed and the film showed that the curves had not progressed. I don't know if my curves have increased due to the second pregnancy since I haven't yet been x-rayed since my second daughter's birth. As far as adult progression goes -- my doctor told me that I could expect the curvature to progress at the rate of one degree every TEN years. But I don't think that doctors can really predict curve progression with any accuracy since it seems that some peoples' curves are just fated to get worse, while others' will not. My doctor may have told me one degree per ten years since my curves were both under 30 degrees at that point, but as we've learned from other posts, some folks with very minor curves have experienced substantial progression as adults. Erica ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Spicy419@aol.com Date: Fri, 13 Nov 1998 17:24:52 EST Subject: Re: question on pregnancy Hi Kat: I did not experience any problem with my scoliosis while pregnant, Had 2 daughters natural birth, everything with the pregancy was great. NancyV. ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Leah640@aol.com Date: Fri, 13 Nov 1998 18:37:58 EST Subject: Re: Posts off subject In a message dated 11/13/98 4:41:54 PM Eastern Standard Time, delirium@getaway.net writes: > Ok, so should we use NCC or OT? > Rich, is there an official procedure for this? When we decide, could it > be added to the FAQ's on the Scoli. Mailing List webpage? > ... good idea, but why not ncs? for not concerning scoli? Leah ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: VSlaybaugh@aol.com Date: Fri, 13 Nov 1998 19:03:04 EST Subject: Re: I need help In a message dated 11/13/98 11:17:23 AM Central Standard Time, LRZuber@newchurch.edu writes: > I was wondering if any of you could lead me to some info on scoleosis. > I'm doing a report on it for my Senior Human Body class. I picked it > because my younger brother has scoleosis. If you could possibly send me a > ... Logan, Here are some sites for you to check out. Vicky Scoliosis Support Group of Queensland http://www.geocities.com/Heartland/Hills/9734/geobook.html The following is a Milwaukee Brace Page and is recommended for those who want more info on the Milwaukee. Scoliosis ­ The Milwaukee Brace This is an information page about scoliosis. SCOLIOSISRX: SCOLIOSIS TREATMENT This is a message board for Scoliosis http://www.scoliosisrx.com/intouch.htm This is Jeni's Scoliosis page message board. Also check out her home page and many links. Scoliosis Support www.mmae.itt.edu/scoliosis/backtalk.html This is a good info page. OrthoSpine Medical Topics - Scoliosis Q&A (Spine - Scolsiosis -Back Pain) scoliosis.html Wheeless' Textbook of Orthopaedics Heres some great sites for Scoliosis www.spine-surgery.com/assoc/Scoliosis.htm www.geocites.com/heartland/ranch/6614/page3.html Check this one out. Go here first: GeoCities - The Largest Community on the Web! www.geocites.com/hotsprings/8095/geobook.html Rough draft: Scoliosis packet (National Women's Health Network) Kyphosis Braces: Kyphosis Braces Scoliosis Image Page Amy's Xcellent Website !! ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: HugEBear36@aol.com Date: Fri, 13 Nov 1998 20:01:32 EST Subject: Re: I need help You might want to start with the correct spelling ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: hmc Date: Fri, 13 Nov 1998 19:48:54 -0500 Subject: Re: I need help OOOPS! I am so sorry ! I didn't mean to send ALL my bookmarked sites to you guys -- just the medical ones for Logan! I'm sorry if this has caused anyone any problems size-wise, etc. - --hmc. ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: RAHannig00@aol.com Date: Fri, 13 Nov 1998 21:59:08 EST Subject: Re: pregnancy and scoli Hi, I saw the note below from Leah, and wanted to join in to say my daughter was worth all the health problems I took on. I have not had my spine evaluated since I was 16, after my second fusions (I'm now 39), but my back pain has increased since my daughter was born 3 years ago. My pregnancy also brought on the onset on Meniere's Disease (an inner ear disorder that causes vertigo and nausea, and can lead to permanent dizziness and deafness). Despite all this I am so glad I had my little girl, it was all worth it. I will not have more children because all my chronic conditions (I have others) can be worsened, and I need to stay as healthy as possible for my one child. But I'd do it all again just to have her. Robin. << In a message dated 11/13/98 10:47:14 AM Eastern Standard Time, KKRUGER@ddiworld.com writes: > (Is everyone sick of this question yet?!?! I'm on a mission here, > sorry! My boyfriend and I are in possible marriage/child negotiations > sort of..... :) ) > kat > Not at all sick of it, it is a good thing to look into, but even if it does change your spine let me just add my own humble opioion, I think it would be worth it. I Would have done it anyway, even if I thought it would have effected my spine. Being fusied, I had been told no more than 3 pregnancies. I have 2 wonderful healthy kids and am happy I did. It may have ( I will never know) increased my pain levels but even if that was what made it worse it was worth it. I would never give up the chance to be a mom. Leah >> ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: richa@softcom.net Date: Fri, 13 Nov 1998 12:24:59 -0800 Subject: Re: Hi Vanessa, Maybe you have your brace too tight. My ribs used to hurt me and my shoulder. The brace helped my shoulder pain, but worsened my rib pain. When I loosened my brace, the rib pain went away! Try to loosen your brace ok? Bye! Reece For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "A & S Lanser" Date: Fri, 13 Nov 1998 16:00:50 -0500 Subject: Re: Sanet's 4 weeks post-op Hellooooo all! These are my doctor's written instructions (amoungst others): "You might be more comfortable sitting in an arm chair which is not to low. No sports for 12 weeks. Only light housework for 6 weeks. No driving for 12 weeks. No swimming for 6 weeks, then check with your doctor." And, that's what I've been doing: "light housework" Sanet ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Bogima@aol.com Date: Fri, 13 Nov 1998 16:47:05 EST Subject: Re: Sanet's 4 weeks post-op In a message dated 98-11-13 11:30:58 EST, you write: << I don't think that we should be criticizing Sanet for working too hard. >> I guess it's all in the eyes of the beholder, but it seemed to me to be concern rather than criticism. Bonnie ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Bogima@aol.com Date: Fri, 13 Nov 1998 16:52:30 EST Subject: Re: Post Op Joint Pain In a message dated 98-11-13 11:50:20 EST, you write: << I also found that I had far less energy than normal for at least the first year post-op. >> Hi Linda, Boy, did this come at a good time for me! I am 11and 1/2 months post op and feeling relatively pain free so am pretty much back to a so-called normal life, with restrictions such as being careful, not lifting, watching that I don't aggravate anything by sitting too long, etc. So I have a pretty full day, but I get so tired so easily! I had begun to think that I aged a lot in the two years since I've been able to have a busy day and started to think my lack of energy is solely age related. When you said "...at least a year", it made me think that I still have some time to go before I need to reconcile myself to my current energy level. Thank you! Bonnie ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Bogima@aol.com Date: Fri, 13 Nov 1998 16:56:09 EST Subject: Re: Post Op Joint Pain Hi Robin, This is not entirely scientific, of course, :-), but perhaps your pain is the result of the combination of your being so close to surgery and a week of rain. Bonnie ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Spicy419@aol.com Date: Fri, 13 Nov 1998 17:13:40 EST Subject: Re: Pain Clinics Hi Richard: Were are in the same boat, after 8 months of intense PT. now Im using the TENS unit, so far it has worked, even thought Im using it since I get up intul I go to sleep. But this is my last try for my Dr.'s advice if not I will start going for acupunture myself. Weel GOOD LUCK for use right? Nancy V. ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "A & S Lanser" Date: Fri, 13 Nov 1998 19:23:24 -0500 Subject: Re: Post Op Joint Pain - -----Original Message----- From: Robin Murphy Subject: Post Op Joint Pain >Has anyone had any problems with Post Op pain in their joints (elbows, hands, hips, knees, etc)............ In the past when I had problems with some drugs one of the side-effects was joint pain. >Could this be a reaction to all the new instrumentation in my body? .....It has been raining for the last week and I miss my walks. Otherwise I >Robin Hi Robin I found your mail to be very interesting. In the beginning of your letter you mention that you've had this kind of pain in the past and it was drug related. Could it be that it's the drugs that is causing this pain? I don't know what the reaction to the instrumentation would be, but I would guess that it would be the same as for any other allergy (localized symptoms -pain, swelling, inflammation, redness, -as well as systemic). I don't know about others on the list, but I definitely find with a high humidity (like when it rains as you mention), I find that my kneejoints pain (I have no known knee problems) and could that be the reason for your pain? I know the medical profession laughs this one off, but I feel the whether in my left knee?! I haven't had any of the pains you mention since my surgery 4 weeks ago, except my left knee the past day or so (and we are experiencing a high humidity, nothing new). If I were in your shoes, I would definitely seek professional help. Sanet ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Pegclay123@aol.com Date: Sat, 14 Nov 1998 00:04:35 EST Subject: Re: Posts off subject ncs sounds good to me ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ End of scoliosis V1 #1012 ************************* You're reading a composite here: the scoliosis-digest is a daily encapsulation of messages sent to four different mailing lists: scoliosis, scoliosis-medical, scoliosis-child and scoliosis-teens. If you're responding, you can determine which list message above was posted to by looking at the message footer. To post your own email to scoliosis, send it to "scoliosis@ai.mit.edu". To post your own email to scoliosis-medical list, send it to "scoliosis-medical@ai.mit.edu". To post to scoliosis-child, send your message to "scoliosis-child@ai.mit.edu." To post your message to scoliosis-teens, send it to "scoliosis-teens@ai.mit.edu". Be sure to see the scoliosis web page at "http://www.ai.mit.edu/extra/scoliosis/scoliosis.html". For help on using the scoliosis-digest, (especially unsubscribing) send an electronic mail message to "scoliosis-digest-request@ai.mit.edu" with one line of text: "help". Spammers and promotional posts not allowed.