From:      bounce-scoliosis
To:        scoliosis-digest@ai.mit.edu
Subject:   scoliosis V1 #417
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scoliosis                   Monday, 7 April 1997        Volume 01 : Number 417


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From: Jamie Cook <cookj@sprynet.com>
Date: Sun, 06 Apr 1997 17:02:12 -0500
Subject: Re: Scoliosis

Patty Aguila wrote:
> 
> I read your information on the internet.  Do you have any information
> about the Copes Foundation?  I understand they can treat scoliosis in a
> "non-invasive" manner (no surgery).
> 
> I've had scoliosis for a long time.  I wore a Milwaukee Brace when I was
> younger but now I just feel tired all the time and I am short of breath
> alot.  I feel like my quality of life is very effected.
> 
> I would like some information if you have any on some other
> "non-invasive" treatments.
> 
> Thank you.
> 
> Patty Gore
> 
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Patty,
	The only information I have found on the Copes Foundation is their
homepage.  It is at http://www.scoliosis.com/index.html.  It will tell
you about what it is, how it works, and who can use it.  You will also
find a 1-800# and mailing addresses.  Their e mail address is
artcopes@worldnet.att.net .  I have also found information on treatment
through massage therapy at
http://www.concentric.net/~Orthodoc/scoliosis.shtml#Scoliosis tx . I
have never had any form of treatment myself and I feel that it has
definitly made things worse for me now.  I am also very tired all the
time, and about two years ago I started to feel out of breath after
doing simple things like walking up stairs.  If you haven't already done
so, you should concider having an MRI done.  Trouble breathing could
signal that your lungs are being effected. I hope this information is
helpful.  If you find anything else out about new kinds of treatment
please let me know. If you have any questions about MRI's don't hesitate
to ask.
						Jamie Cook
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From: Jamie Cook <cookj@sprynet.com>
Date: Sun, 06 Apr 1997 17:06:46 -0500
Subject: Re: Scoliosis

jon k barnes wrote:
> 
> Patty Aguila wrote:
> >
> > I read your information on the internet.  Do you have any information
> > about the Copes Foundation?  I understand they can treat scoliosis in a
> > "non-invasive" manner (no surgery).
> >
> > I've had scoliosis for a long time.  I wore a Milwaukee Brace when I was
> > younger but now I just feel tired all the time and I am short of breath
> > alot.  I feel like my quality of life is very effected.
> >
> > I would like some information if you have any on some other
> > "non-invasive" treatments.
> >
> > Thank you.
> >
> > Patty Gore
> >
> > -----------------------
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> > To: scoliosis-request@ai.mit.edu
> > Body: subscribe
> > Body: unsubscribe
> Patty,By all means try copes its alot of hard work but the rewards are
> worth it, also before you try it get an opinion from an approved
> orthopedic surgeon to ensure your health is O.K.
> J. Barnes
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Jon,
	Have you used the Copes method of treatment? I haven't heard much about
it and I am curious as to what it really is.  I might have to have
surgery for my scoliosis and the thoght of the recovery makes me unhappy
with the whole situation.  I have congenital scoliosis. Do you know if
copes would help?
				Jamie Cook
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------------------------------

From: jon k barnes <jkbarnes@ocsnet.net>
Date: Sun, 06 Apr 1997 16:56:09 -0700
Subject: Re: Scoliosis

Jamie Cook wrote:
> 
> jon k barnes wrote:
> >
> > Patty Aguila wrote:
> > >
> > > I read your information on the internet.  Do you have any information
> > > about the Copes Foundation?  I understand they can treat scoliosis in a
> > > "non-invasive" manner (no surgery).
> > >
> > > I've had scoliosis for a long time.  I wore a Milwaukee Brace when I was
> > > younger but now I just feel tired all the time and I am short of breath
> > > alot.  I feel like my quality of life is very effected.
> > >
> > > I would like some information if you have any on some other
> > > "non-invasive" treatments.
> > >
> > > Thank you.
> > >
> > > Patty Gore
> > >
> > > -----------------------
> > > Scoliosis Mailing List Commands
> > > To: scoliosis-request@ai.mit.edu
> > > Body: subscribe
> > > Body: unsubscribe
> > Patty,By all means try copes its alot of hard work but the rewards are
> > worth it, also before you try it get an opinion from an approved
> > orthopedic surgeon to ensure your health is O.K.
> > J. Barnes
> > -----------------------
> > Scoliosis Mailing List Commands
> > To: scoliosis-request@ai.mit.edu
> > Body: subscribe
> > Body: unsubscribe
> 
> Jon,
>         Have you used the Copes method of treatment? I haven't heard much about
> it and I am curious as to what it really is.  I might have to have
> surgery for my scoliosis and the thoght of the recovery makes me unhappy
> with the whole situation.  I have congenital scoliosis. Do you know if
> copes would help?
>                                 Jamie Cook
> -----------------------
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Hi Patty,

I have not used the Copes method. I have researched the method for my 3
year old son and determined it is not for us. My sons curve is 85
degrees and the only method for him is fusion. Patty every case of
scoliosis is different and different methods work for different people,
I have talked to and read several reports on the Copes method and
several people have reduced their curves quite a bit 10,20,and even 30
degrees. It just depends on how dedicated you are to determine if this
method is for you. You can read all about it at:www.scoliosis.com/
this should awnser all of your questions. I dont know where you are
although I would reccommend if your not seeing an Orthopedic surgeon you
should see one right away, I would refer you to Dr.Vernon Tolo
L.A.Children's Hosp, Dr.Larry Rinsky at Stanford University, or Dr.
David Bradford located in San Francisco, These are Extremely well
trained surgeons they have seen alot.
Thanks Jon
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------------------------------

From: XTreamer@aol.com
Date: Sun, 6 Apr 1997 22:46:08 -0400 (EDT)
Subject: Copes & trouble breathing

I don't know much about Copes (I assume it's some type of bracing mechanism).

If you are having trouble breathing due to scoliosis and haven't recently
seen a scoliosis specialist, make an appointment and find out the current
degree of your curvature.  

I didn't have severe breathing problems until my curve reach 75 degrees.  I
had surgery, and, to this day, believe that nothing else would have stopped
the progression of my curve.  

Dinah

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From: jon k barnes <jkbarnes@ocsnet.net>
Date: Sun, 06 Apr 1997 20:49:30 -0700
Subject: Re: Copes & trouble breathing

XTreamer@aol.com wrote:
> 
> I don't know much about Copes (I assume it's some type of bracing mechanism).
> 
> If you are having trouble breathing due to scoliosis and haven't recently
> seen a scoliosis specialist, make an appointment and find out the current
> degree of your curvature.
> 
> I didn't have severe breathing problems until my curve reach 75 degrees.  I
> had surgery, and, to this day, believe that nothing else would have stopped
> the progression of my curve.
> 
> Dinah
> 
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Dinah,
You are so correct, Believe me when you have scoliosis and have trouble
breathing no matter what, you need to see an orthopedic surgeon! You
could be accually be crushing your Lungs, Liver, and Kidneys, not to
mention your HEART!, Please if your in doubt have a cardiac echo test
and nuclear medicine to test your kidneys,and liver a doctor worth his
salt would help you in this area!
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End of scoliosis V1 #417
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