From:      bounce-scoliosis
To:        scoliosis-digest@ai.mit.edu
Subject:   scoliosis V1 #439
Reply-To:  
Errors-To: bounce-scoliosis
Precedence: bulk


scoliosis                 Wednesday, 30 April 1997      Volume 01 : Number 439


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From: Danny Thomas <thomas@pacific.net>
Date: Tue, 29 Apr 1997 07:24:42 -0700 (PDT)
Subject: Re: scoliosis V1 #415

>I'm getting through.  Could someone please let me know if there is/are any
>kind of Pain Clinics in the San Francisco Bay Area?  Especially in the East
>...

Meir Schnieder at the center for self-healing really help my daughter with
pain management related to scoliosis.  He taught her exercises and
recommended a massage therapist that has worked wonders.  He is in San
Fransisco.  Good Luck!

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From: Momble@aol.com
Date: Tue, 29 Apr 1997 11:35:44 -0400 (EDT)
Subject: Re: scoliosis V1 #415

I've had a brief experience with Pain Management Doctors and all they did for
me was to give cortisone shots directly into the spine. The cortisone flair
was incredibly painful and the shots did no good. I hope you have better
luck. I suppose it depends on the doctor you find and your individual
case.Momble

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From: Genene <gsoul@mindspring.com>
Date: Tue, 29 Apr 1997 12:27:51 -0500
Subject: Re: scoliosis V1 #415

Maybe your pain is a result of some kind of emotional stress?  I find
that the more anxious I am mentally, the worse my muscle spasms/curve
get -- I strongly recommend looking into relaxation techniques, 
meditation, thought control.  Pain medication only covers up symptoms 
temporarily, and causes side effects and toxicity to the body.  

Genene

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From: Cathleen Thompson <cathy@frontiernet.net>
Date: Tue, 29 Apr 97 17:09:39 +0100
Subject: further update on surgery

Thank you for all of you for responding.  I admit I was more than a 
little frustrated.  At one of your suggestions, I contacted the hospital 
who gave me the volunteer office.  I found there was a residence house 
they maintained that would allow me to stay the night before the surgery 
for $12 AND (which has me even more excited) allow my Mom to stay there 
while I'm in the hospital for $12 per night.  They also help out with 
meals in the hospital cafeteria!  Mom is 76 and could never manage the 
drive through Buffalo on her own..but as long as I'm with her to take 
over in emergency we can get home.  It will also be wonderful to have 
someone available at the hospital so I don't have to go through this all 
alone.  I still like my doctor, but I'm very disappointed in his office 
help.  They should have been aware of this program and directed people to 
it.  In addition, I have to arrange all the insurance precertification 
that I really feel the doctor's office should be doing.  On the plus 
side..I am down to have both my upper curve corrected and the lower disk 
problems dealt with.  I have to give a pint of blood and have an 
appointment for that.  I was shocked at the $60 price through the 
American Red Cross!  I have to pay this up front and then hope my 
insurance will reimburse it.  I'll be honest..I'm very disappointed by 
this charge.  I worked as a volunteer at many a blood mobile when I was 
growing up and have given many donations to the Red Cross in the 
past..both in blood and money..I don't think they should have this type 
of excessive charge for storing  your own blood for surgery.  I know 
there are expenses involved, but don't come to me for a donation in the 
future.  Now things are working out..I very much want this over with.  I 
think our American medical system needs some serious rethinking.  It 
should not be this hard to get proper medical care!

Cathleen Thompson

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From: Linda Racine <lindaracine@earthlink.net>
Date: Tue, 29 Apr 1997 15:44:57 -0800
Subject: Flatback Syndrome Followup

I posted an incorrect phone number for the doctors at UCSF yesterday. 
The correct number is 415/476-8993.
Sorry
Linda

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From: ROCKET7908@aol.com
Date: Tue, 29 Apr 1997 18:52:32 -0400 (EDT)
Subject: Re: Scoliosis TV show

I was interested to see your message about the TV show on Dr. Richard
Balderstons operation on an adult scoliosis patient. I have actually had
three scoloiosis surgeries by him--everything is stable but I still do not
have much quality of life--can't walk except in my Nike Air Max's-----I think
I need to work on getting my whole body back in shape--the last surgery, I
was in a leg and body brace for 4 months and couldn't exercise at all for so
long. I am 54 now and have been at this for 7 years--last operation was two
years ago in May and I am still  in pain alot of the time. I would be
interested to hear from you and what your post-operative experiences have
been.

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End of scoliosis V1 #439
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