From:      bounce-scoliosis
To:        scoliosis-digest@ai.mit.edu
Subject:   scoliosis V1 #457
Reply-To:  
Errors-To: bounce-scoliosis
Precedence: bulk


scoliosis                   Tuesday, 20 May 1997        Volume 01 : Number 457


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From: Momble@aol.com
Date: Mon, 19 May 1997 06:24:14 -0400 (EDT)
Subject: Julie S-lift

Hey, we have even more in common. Same Dr., same hosp., same leg problem. My
solution is to not wear the lift. I caught hell for it on numerous occasions
but I got used to going without it(in Fla you don't wear shoes much). If I
have problems because I don't wear it, I'm used to them. It's been a long
time since I stopped. When you have scoliosis, your body compensates for a
lot. The only real problem with not wearing the lift is getting the hem
straight on my skirts! Momble

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From: "carlfinn" <carlfinn@webfactory.co.uk>
Date: Mon, 19 May 1997 16:12:11 +0100
Subject: [none]

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From: "Robert Bartlett" <BARTLETT@polsci.purdue.edu>
Date: Mon, 19 May 1997 12:56:55 EST (GMT-5)
Subject: leg length difference

Linda,

    My daughter has been diagnosed with a leg length difference.  It 
can be seen between the knee and foot as well as between the knee and 
hip so it is not an illusion caused by a tilted pelvis.  Also it has 
been measured on the x-rays.  It was not initially noticed by the 
orthopedic surgeon, but by a physical therapist.  Subsequently our 
second opinion pediatric scoliosis specialist noticed it immediately.  
Her leg length difference isn't caused by polio or injury, although 
those are common causes.  Our specialist says that such leg length 
differences might possibly be the cause of, or contributing cause of, 
scoliosis.  Neuwirth's Scoliosis Handbook also suggests that leg 
length differences can be a cause in a small minority of cases.

                                        Bob

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From: pjjj4@mail.cvn.net
Date: Mon, 19 May 1997 17:03:32 -0400
Subject: Re: leg length difference

- ----------
> From: Robert Bartlett <BARTLETT@polsci.purdue.edu>
> Subject: leg length difference
> 
  Our specialist says that such leg length 
> differences might possibly be the cause of, or contributing cause of, 
> scoliosis.  Neuwirth's Scoliosis Handbook also suggests that leg 
> length differences can be a cause in a small minority of cases.
> 
>                                         Bob
> 

Bob,

I find this really interesting.  These are the questions that came to mind
after reading your post:

1.  Did my leg length difference come before or possibly cause the
scoliosis?  (I had been told it was the other way around)
2.  Would I have had a scoliosis regardless of the leg length problem?
3.  Is this something to keep an eye on with our young children?  
4.  If a child is found to be growing  at an uneven rate in the legs, 
would wearing a heel lift possibly help them not to develop a scoliosis?

Of course I know there are no quick answers here - scoliosis seems to be
like that!  

Julie S.


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From: JedediahB@aol.com
Date: Mon, 19 May 1997 17:46:51 -0400 (EDT)
Subject: Bracing

I am excited to see young adults with SB on this list.  We have a 6 year old
son with spina bifida (L1) who has an S-shaped curve of 70+ degrees
(sitting).  It's much less when he's lying down.  He walks a little, using
crutches and an RGO (reciprocating gait device) up to his chest.  We have
seen 3 doctors; the first one leaned toward going ahead now with spinal
fusion.  The other two think we can wait, since Jordan's not having any
problems sitting in his wheelchair (or any other chair for that matter) and
since the curve is still very flexible.  We plan to go with the majority on
this one, since 6 years old is a little early to have fusion, according to
what we're hearing.  We know he'll need surgery soon, but we've heard a lot
of arguments for waiting as long as we can for his skeleton to grow.

Our dilemma (and it's a good one to have) is that the two doctors who
recommended against doing surgery right away don't entirely agree.  One says
he would advise that Jordan wear a body jacket to try to further postpone
surgery.  The other doctor says the body jacket is too restrictive for the
"wiggle-worm" who is our son, and this outweighs the benefits of bracing
(which this MD thinks are pretty small).

I would appreciate hearing from anyone (not just SB survivors and parents,
though those folks probably have histories more like ours.  Please share
experiences, thoughts, and feelings about bracing.....yes or no, what kind,
etc.

Thanks in advance.
Jed
jedediahb@aol.com

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End of scoliosis V1 #457
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