From:      bounce-scoliosis
To:        scoliosis-digest@ai.mit.edu
Subject:   scoliosis V1 #488
Reply-To:  
Errors-To: bounce-scoliosis
Precedence: bulk


scoliosis                  Wednesday, 2 July 1997       Volume 01 : Number 488


----------------------------------------------------------------------

From: Momble@aol.com
Date: Tue, 1 Jul 1997 05:22:07 -0400 (EDT)
Subject: Re: pediatric neuromuscular scoliosis

Liz,
  My surgeon is in Pa. He is at the Hershey Medical Center. 
      Edwards P.Schwentker, M.D.
      Medical Director
      University Hospital Rehabilitation Center
       
       P.O. Box 850, Hershey, Pa. 17033
        (717) 531-7312
 I hope this helps. He is excellent! Momble

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------------------------------

From: QKET09B@prodigy.com (MISS ELANA J BERNSTEIN)
Date: Tue,  1 Jul 1997 12:58:09, -0500
Subject: Thanks Linda

Linda,
Thank you for the SRS docs in NJ.  I haven't been on in a while, or I 
would have responded sooner.  Thanks again!
- -Elana

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From: FrancescaH@aol.com
Date: Tue, 1 Jul 1997 16:00:42 -0400 (EDT)
Subject: Re: Need specialist in Atlanta

hi Teri -

I live in Atlanta and suggest Dr. Raymond Morrissy at Scottish Rite.  I've
been with him for 8 years, and respect him greatly.  He is a member of SRS,
and is greatly respected in pediatric orthopaedics (especially scoliosis)....
 I saw a different doctor regarding my knee, and when I told him who my back
doctor was, he replied in a "Dr Morrissy?  Whoa..."   He has also written a
research book or two with numerous editions, and has a bunch of interns
working with him all of the time.   A friend of mine told me it took her two
months to get an appt to see him the first time, but later she said it was
worth it.  Oh, and Dr. Morrissy only sees appts on Wednesdays.

Also, there is another respected doctor, Dr. Schmidt at Emory/Egleston, also
a SRS member.  I saw him because of a recommendation.  I preferred Morrissy's
bedside manner to Schmidt.  Different personalities go with different docs.

Good luck -- and if you see Dr Morrissy, you can mention my name, Francesca
Halter.  -F



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From: "Richard A. Lethin" <lethin@equator.com>
Date: Tue, 1 Jul 1997 11:27:44 -0400
Subject: FW: BOUNCE scoliosis@ai.mit.edu: Non-member submission from [RoohBear@aol.com]

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>From lethin@life.ai.mit.edu  Tue Jun 24 19:42:46 1997
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To: scoliosis@ai.mit.edu
Subject: Re:  Chiropractors

My daughter, who was 11 years old at this time last year, was diagnosed with
scoliosis. We were fortunate to find this out early, as her curve was only
about 12 degrees.  She began treatment last August, and by December, when we
took her back to her family doctor for subsequent X-rays, her spine was
nearly straight, so much so that the doctor who originally diagnosed her was
questioning his diagnosis!  (We hadn't told him of her treatments until
then).  We're thrilled to death and thank the Lord constantly for this.
 She'll continue treatments well into her 20's.  I'll be happy to refer this
Chiropractor who, by the way is also a scoliosis patient, to anyone living in
the North Texas area!  


Best to you and your family,
Kimberli



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From: "Richard A. Lethin" <lethin@equator.com>
Date: Tue, 1 Jul 1997 11:40:50 -0400
Subject: FW: BOUNCE scoliosis@ai.mit.edu: Non-member submission from [Aaron <aaron@huron.net>]

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From: Aaron <aaron@huron.net>
To: scoliosis@ai.mit.edu
Subject: SRS canadian listings?



Hi, I'm currently seeing Dr. Gurr of London Ontario who is treating me for
my scoliosis.  He seems Extremely competent, I was just wondering if he's
in this listing of scoliosis surgeons.. also if anybody else has had him
and gone through surgery, I'd love to hear from you, as I'm having my
surgery done 2 months from now.

thanks,

- -aaron           
- ----------------------------------
E-Mail: Aaron <aaron@huron.net>
Date: 28-Jun-97
Time: 00:22:57

- ----------------------------------



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From: "Richard A. Lethin" <lethin@equator.com>
Date: Tue, 1 Jul 1997 11:42:10 -0400
Subject: FW: BOUNCE scoliosis@ai.mit.edu: Non-member submission from [Dave & Katrina <kat@junct.com>]

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To: scoliosis@ai.mit.edu
From: Dave & Katrina <kat@junct.com>
Subject: I am vary scared

Hi, I am a 16 year old female and I am very horrified of what maked me feel
absoultly terrible.
I have scoliosis not minor like most females naturaly get but pretty bad.
Not bad enough you can tell by looking at me but when i looked at my e-rays
for the first time i went into tears wondering if I was going to die or
something. That was at the chiropractor. He told me thier were phases that
people like me went through and I was in a late stage. He also said he would
make me feel better. I had severe pains in my head but only in certain
spots, dizziness,things that just happened for a day then would be gone.
Thier has been so much pain through the years and so many different kinds of
pain. It came to the point that I couldnt run anymore and play softball. It
hurt my head and made me dizzy. This has interupted my life so much that it
kills me to think about it. 

  So I thought that maby its not scoliosis, maby its something wlse a
differents disease, I quit the chiropractor it wasnt doing me enough good to
keep my mother in debt. So later i thought i had MS but I got the tests and
nothing. Everytime I ask someone that has scoliosis if they ever feel this
way they say no. So i freak out wondering what in the hell I have. I stand
up and grab my head cause its like a major head rush come over me to where i
have to stable myself. Thats not all the time it comes and goes. Also about
hte pains, when i pop my neck they seem to go away. Till later.

   The thing that has totally concerned me right now is the current problem,
my neck and jaw. Mainly my whole entire head seems is so weak its as if i
cant even hold it up on myself anymore I actually have to try and hold my
head up. It feels like my muceles are so weak that I cant even chew for very
long. I try and lay down but it still feels so weak that i can't even go to
sleep, it bothers me so bad.

   Tell you the truth I dont want to die and this makes me feel like I will
die in my sleep or something. I am so scared I cant even think and its been
that way for years.

    I went to a nuerologist and he told me i was just depressed and gave me
prozac although i never took it. I dont want to turn into a drugged out
zombie, The doctor never even looked at my back he just made me do some of
the eye-hand exercises that i have done a hundred times before and then sent
me on my way.

   What i really want to know is can scoliosis cause something like this or
is it something else. If it is scoliosis then what do I do to get it fixed.
Or what should I do about finding out whats really wrong. If i go to a
regular doc they send me to the specialist and the specialist sends me home
with out ever looking at me saying "give me my 2 hundred buck and get out
(practicaly).


    PLEASE HELP AND REPLY I AM SO SCARED I CANT TAKE ANY MORE OF THESE DAYS
OF WORRING AND WONDERING IF ILL LIVE TO SEE TOMMOROW. My life is so full of
tears that are not really necissary.

     
     PLEASE HELP,
     it be a gift from GOD to feel better.


     sincerely,
   Katrina Swift




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From: Linda Racine <lindaracine@earthlink.net>
Date: Tue, 01 Jul 1997 14:41:59 -0800
Subject: Re: FW: BOUNCE scoliosis@ai.mit.edu: Non-member submission from [RoohBear@aol.com]

Kimberli...  

There is absolutely no proof of chiropractic treatment reducing curves. 
Your daughter's success might be attributable to a growth spurt which
can straighten the spine.  

It was probably safe for your daughter to see a chiropractor because her
curve was so minor.  It is not safe, however, for adolescents with
greater curves.  These children get one chance for a brace to work, and
if they choose see a chiropractor instead of wearing a brace, they
probably are setting themselves up for surgery.

By the way, I'm not against chiropractic.  I see a chiropractor
regularly for neck pain.  A good chiropractor will tell you they cannot
stop or reduce the progression of a curve, but may be able to reduce
associated pain.

Linda

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From: Linda Racine <lindaracine@earthlink.net>
Date: Tue, 01 Jul 1997 14:48:51 -0800
Subject: Re: FW: BOUNCE scoliosis@ai.mit.edu: Non-member submission from [Dave & Katrina <kat@junct.com>]

Katrina...

You should see another neurologist.  It sounds like you might have more
than one problem.  I seriously doubt that your dizziness is caused by
scoliosis.  Your neck problem and your jaw problem, however, MIGHT be
related to scoliosis.  (I too get headaches that go away when I stretch
my neck enough to make it pop.)  

If your scoliosis is indeed severe, and you have back pain, you are a
candidate for spinal fusion.  You should find a scoliosis specialist in
your area.

Sorry for all your problems.  I hope you find some answers.

Linda

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From: Linda Racine <lindaracine@earthlink.net>
Date: Tue, 01 Jul 1997 14:49:48 -0800
Subject: Re: FW: BOUNCE scoliosis@ai.mit.edu: Non-member submission from [Aaron <aaron@huron.net>]

Aaron....
Dr Gurr is a member of the SRS.
Linda

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From: Wood <aae76@atl.mindspring.com>
Date: Tue, 01 Jul 1997 17:52:48 -0400
Subject: Re: Kimberli

Kimberli, 

What type of things did the chiropractor do for your daughter?  Stretches,
adjustments, etc. and how frequently?

Thank you,
Teri


>My daughter, who was 11 years old at this time last year, was diagnosed with
>scoliosis. We were fortunate to find this out early, as her curve was only
>about 12 degrees.  She began treatment last August, and by December, when we
>took her back to her family doctor for subsequent X-rays, her spine was
>nearly straight, so much so that the doctor who originally diagnosed her was
>questioning his diagnosis!  (We hadn't told him of her treatments until
>then).  We're thrilled to death and thank the Lord constantly for this.
> She'll continue treatments well into her 20's.  I'll be happy to refer this
>Chiropractor who, by the way is also a scoliosis patient, to anyone living in
>the North Texas area!  
>
>
>Best to you and your family,
>Kimberli
>
>
>
>For help on using this list (especially unsubscribing), send a message to
>"scoliosis-request@ai.mit.edu" with one line of text: "help".
>

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From: KrashLoad@aol.com
Date: Tue, 1 Jul 1997 19:15:08 -0400 (EDT)
Subject: Re: FW: BOUNCE scoliosis@ai.mit.edu: Non-member submission from [Aaron <aaron...

Hi Aaron.  I am wondering how old you are to be having surgery. I am 16. I
myself am having surgery on July 24.  Please write back so we can exchange
ideas about it.  Best of luck with your surgery.

Allison

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From: Julio2222@aol.com
Date: Tue, 1 Jul 1997 20:11:54 -0400 (EDT)
Subject: Re: FW: BOUNCE scoliosis@ai.mit.edu: Non-member submission from [RoohBear@aol.co

FYI
    My daughter went to a chiropractor first. Her curve at that time was 37o.
After 2 months treatment-at $70.oo a week. I took her to a scoliosis
specialist. She seemed worse . Her curve went from 37o to 49o in that 3 month
time. In our case- I wish I had done it differently, But I didn't. It may
have done it no matter what I choose to do. This is the most frustrating
aspec of scoliosis--what treatment do you choose? Who do you go to? Then when
surgery is inevitable, WHICH one .When she was at 49o I talked the doctor
into two months of physical therapy and nutrition. After that 2 months-she
was at 53o. We set up surgery. I let him decide which surgery to do, since he
was the expert.Now, we are at 4 month recovery and she's doing wonderful. I
would rather not have to deal with any of it- The scar, the recovery, the
worry,BUT I always looked at it(when I was in my right mine), It could be
worse. She could have been in a terrible accident, cancer, or a million other
problems that aren't fixable.
         This is just a lookback at what it feels like. Theres times now, we
feel like we've won the lottery.Hope this helps, Cene'

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From: "Lee Bruce" <rlb34@msn.com>
Date: Wed, 2 Jul 97 03:27:51 UT
Subject: Sugerical Fears

My 11 year daughter has worn a modified Milwaukee brace for 4 months and he 
curveature went from 32 to 45 degrees.  We're now considering surgery.  Our 
Doctor, Dr. Jesse Dickson of the Spine Institute in Houston, has stated we 
could monitor her for another 4 months and watch her progress which seems like 
delaying the inevitable surgery.  Can anyone give worried parents 
insight/advice??  Thanks  Lee

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From: Linda Racine <lindaracine@earthlink.net>
Date: Tue, 01 Jul 1997 20:35:21 -0800
Subject: Re: FW: BOUNCE scoliosis@ai.mit.edu: Non-member submission from [RoohBear@aol.co

Cene' -- I couldn't agree with you more.  It's very difficult to know
what treatment to select.  There are so many decisions to make when it
comes to scoliosis treatment.  If you select the wrong one, you're out
all the time you put into it plus the $.  I tried chiropractic,
accupuncture and two different physical therapists before I finally gave
up and saw a surgeon.
Linda

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From: Linda Racine <lindaracine@earthlink.net>
Date: Tue, 01 Jul 1997 20:58:49 -0800
Subject: Re: Sugerical Fears

Lee... If your daughter has been compliant in wearing her brace, there's
probably not much of a reason to wait.  (If she hasn't been compliant,
then the brace might still do her some good.)  On the other hand, 4
months isn't very long to wait.  You could schedule the surgery now for
November and if the curve hasn't progressed by then, cancel the
surgery.  Unfortunately, there's no formula for making these decisions.

Good luck either way.
Linda

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From: kazz@gol.com (Kazz Ueda)
Date: Wed, 2 Jul 1997 16:17:23 +0900 (JST)
Subject: Re:Re: FW: BOUNCE scoliosis@ai.mit.edu: Non-member submission from [RoohBear@aol.co

Hello Linda,
  I'm wondering what treatment to undergo and where to go. I have had 
idiopathic scoliosis-31 degree double major curve. My problems are mainly that 
I have felt heavy pressure in the upper body, have difficulties in walking, 
sitting and standing and have "atopic dermatitis". 
  I've tried many treatments and gone Japanese hospitals for 10 years, but I 
don't find out what to do about my symptoms still now. Almost all the Japanese 
surgeon said that a moderate curve such as me causes the symptoms I describe. 
But almost all the Japanese medical trainer(including Dr. of Rehabilitation 
service) said that strains of the upper right and lower left of the back, and 
the muscle and ligament's unbalance causes my symptoms.
 What do you think about it? Could you please send me your opinion?

Now, I'm contacting with .......
- -Johns Hopkins Health System International service
- -Florida Spine Institute (Dr. Sirna)
http://spinepain.com/index.html
- -COPES Foundation
http://www.scoliosis.com

Sincerely, 
Kazz 
at 4 p.m. on 3-July-97(Tokyo Time)

Sorry, please read the whole story below.........
- ------------------------------------------------------------------------
  My name is Kazuyuki Ueda living in Tokyo, Japan.( male, 34age ). 
I have physically suffered from "idiopathic scoliosis"( 31 degrees,
double major curve ). 
In fact, I have difficulties in walking ( lame in the left leg lightly ),
standing and sitting ( I feel heavy pressure in the upperbody )......etc. 

  These symptoms have interefered with my work, moreover my daily life. 

  Japanese orthopedic surgeons ( Keio University, Tokyo University and
Juntendo University ) said  that there was no probability that scoliosis of 
31degrees (moderate curve) developed my symptoms, and that my  symptoms
 were caused by mental condition. Is it true? 

  What do medical circles of the United States and other countries 
think about the Japanese surgeons' opinion? 

  Please give me some information, and introduce to suitable
organizations  (including an e-mail address ). Please! 


                     Name; Kazuyuki Ueda
                     Sex; male
                     Age; 34
                     Work; Certified Public Accountant 
                     
           
- ------------------------Details---------------------------


[1] The name of a disease ; "idiopathic scoliosis" 

- - I don't know when my back bone curved. 
- - When I was 20 years old, Ifound signs of scoliosis. I  got  lame in the
  left leg  lightly, and soon exhausted.
- - But I felt easy about it, so these symptoms weren't serious as now.
- - In my college days, I had trained  "KARATE" for 2 years. After
  that, symptoms took a  turn for the  worse ( 24 years old ).My muscle
  got stiff and my head couldn't sit straight on my body.
- -Whenever I waiked for 5 minutes, I broke out in sweat even in
  winter. I  was  so  exhausted.
- - For 2 years, I had treatment (osteopathy ) everyday, so I could
  manage to keep daily life. But, I still  have some serious difficulties. 

[2] Difficulties

(1) Difficulty in walking
 - My heels can't touch the ground in walking, so I get so exhausted
   in 5 minutes' walk. But I have not felt the lack of sensation in
   my legs.

(2) Difficulty in standing
 - One side heel doesn't touch the ground. - My lower body loses
    strength.
 - The upper right and lower left of the back get strained extremely. 

(3) Difficulty in sitting
 - In half an hour, I have difficulty in breathing. 

(4) Other difficulties
 - I always feel heavily oppressed in the upper body as if in a suit
   armor. 
 - The upper right and lower left  of the back and the muscle are
   strained extremely.
 - The back of my neck is strained, so I have difficulty in breathing.
 - In the evening ( after about 3 P.M. ), I have much more
   difficulty in walking, and lose my arms' and legs' strength.
 - When tiredness is heaped up, my body becomes feverish, and
   furthermore "atopic dermatitis" appears. ( A secretion oozes.)
 - I have to stay home all day 2 or 3 times a week. 

[3] Doctor's opinion

 (1) Keio University ('95)
 - Orthopedic Surgery
   Check Up; X-ray, MRI
   Opinion ; Scoliosis of under 50 degrees doesn't show such symptoms.
 - Neuro
   Check Up; A blood test, urinalysis, CT-Scan ( the brains )
   Opinion ; No problem.
 - Rehabilitation service
   Check Up; My physical function tested by physical therapists.
   Opinion ; Strains of the upper right and lower left of the
                   back, and the muscle and ligament's unbalance causes the
                   symptoms.

 (2) Tokyo University ('95)
 - Orthopedic Surgery
   Check Up; X-ray, MRI
   Opinion ; Same as Keio University.
 - Neulogy Psychiatry
   Check Up; Mental Test, Interview
   Opinion ; No problem.

(3) Juntendo University ('96)
 - Orthopedic Surgery
   Check Up; X-ray
   Opinion ; Same as Keio University.
 - Neulogy Psychiatry
   Check Up; Examination ( mental and physical )
   Opinion ; Unbalance of the muscle of the back causes such symptoms.
         (Taking muscle-slackness medicine ( HorizonHr-5 )----ineffective.

(4) My home doctor says, " I guess that a curve like this develops some
     symptoms." 

(5) Asahi Shinbun, Science News Department ('96) 
 - A reporter said, " About 10 years ago, scoliosis raised a problem
   at Chiba University. At that time, they reached the conclusion that 
   scoliosis of under 50 degrees and stop-progressed was out of a 
   subject of treatment." 

(6) Welfare Center for the Disabled,  Tokyo ('97) 
 - The doctor in charge said, " I admit your symptoms, but your
   disease doesn't apply to conditions  of a handicapped person 
   regulated the Ministry of Welfare, sorry." 

(7) Pediatric orthopedician at Medical Center of Seatle. 
    (2 March 1997) /via e-mail
- - He said, "Your case and symptoms sound very complicated. I think
  that it will be impossible for anyone to comment about your case
  over the internet as we would need xrays and specific physical 
  examination findings to determine what your problems are.
   Routine ideopathic scoliosis would not account for the majority
  of the symptoms you describe. Patients with unusual symptoms 
  always are concerning for the possibility of an underlying spinal
  cord or other central nervous system problem."

(8) International Federation of Scoliosis Association
        (9 April 1997, Scoliosis@aol.com) /via e-mail
- - The person in charge said, "I don't know what we can add to help
  your difficulties. As you have been told, a 31 curve is considered
  a moderate curve and not generally know to cause the symptoms 
  you describe. It sounds like you have had a variety of exams(MRI
  etc.) to diagnose any problems, and tried many treatments 
  including psychological. Until you are diagnosed perhaps you 
  should consult a pain management specialist to determine the 
  best approach to live with your condition."

[4] My treatment now

- - I'm attending Neulogy Psychiatry (Kudanzaka Hospital) now.
   A doctor in charg (Dr.Yamaoka) said that a 31degrees curve 
   triggered my descrived symptoms and that I could do nothing
   but remove anxiety and wait for recovering a balance in mind 
   and body.
    But he prescrived some medicine (Lexotan2,Ludiomil,Ternelin
   and Halcion.)
    But I hate drugs!
- - A healer ( massager ) comes home a week. ( an hour's treatment )
- - Swimming for an hour everyday.

- -------------------------------------------------------

  I am wondering if my symptoms are caused by mental condition.
After consulting many doctors and taking treatment by many 
healers  ( Chiropractic, KIKO, YOGA . .....etc ),  I have become to 
think that unbalance of the muscle and ligament causes my 
symptoms.

  You may suggest that I should try psycological treatment. But
In Japan, a Psyco-therapist isn't admitted in health insurance.
  Once I was attending French Psyco-therapist working in Japan. 
But a fee was about $100 an hour. It's so expensive!
  So I stopped attending her after 7 times.

  I must support myself with working in Society.
But it's so painful to me, because I get tired soon.

  What can I do more?
- -------------------------------------------------------------
If you like, you read Marfan Network in Japan.
http://www.asahi-net.or.jp/~wc8m-ktu/index.html


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"scoliosis-request@ai.mit.edu" with one line of text: "help".

------------------------------

From: kazz@gol.com (Kazz Ueda)
Date: Wed, 2 Jul 1997 21:09:35 +0900 (JST)
Subject: Re:Re: FW: BOUNCE scoliosis@ai.mit.edu: Non-member submission from [RoohBear@aol.co

Hello Linda,

Sorry, I mistook  a sentence.

Wrong/Almost all the Japanese surgeon said that a moderate curve such as me 
causes the symptoms I describe. 

Correct/Almost all the Japanese surgeon said that a moderate curve such as me 
didn't causes the symptoms I describe. 

Regards,
Kazz Ueda

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From: Linda Racine <lindaracine@earthlink.net>
Date: Wed, 02 Jul 1997 09:13:38 -0800
Subject: Re: FW: BOUNCE scoliosis@ai.mit.edu: Non-member submission from [RoohBear@aol.co

Kazz Ueda wrote:
> 
> Hello Linda,
>   I'm wondering what treatment to undergo and where to go. I have had
> idiopathic scoliosis-31 degree double major curve. My problems are mainly that
> I have felt heavy pressure in the upper body, have difficulties in walking,
> sitting and standing and have "atopic dermatitis".
>   I've tried many treatments and gone Japanese hospitals for 10 years, but I
> don't find out what to do about my symptoms still now. Almost all the Japanese
> surgeon said that a moderate curve such as me causes the symptoms I describe.
> But almost all the Japanese medical trainer(including Dr. of Rehabilitation
> service) said that strains of the upper right and lower left of the back, and
> the muscle and ligament's unbalance causes my symptoms.
>  What do you think about it? Could you please send me your opinion?
> 
> Now, I'm contacting with .......
> -Johns Hopkins Health System International service
> -Florida Spine Institute (Dr. Sirna)
> http://spinepain.com/index.html
> -COPES Foundation
> http://www.scoliosis.com
> 
> Sincerely,
> Kazz
> at 4 p.m. on 3-July-97(Tokyo Time)
> 
> Sorry, please read the whole story below.........
> ------------------------------------------------------------------------
>   My name is Kazuyuki Ueda living in Tokyo, Japan.( male, 34age ).
> I have physically suffered from "idiopathic scoliosis"( 31 degrees,
> double major curve ).
> In fact, I have difficulties in walking ( lame in the left leg lightly ),
> standing and sitting ( I feel heavy pressure in the upperbody )......etc.
> 
>   These symptoms have interefered with my work, moreover my daily life.
> 
>   Japanese orthopedic surgeons ( Keio University, Tokyo University and
> Juntendo University ) said  that there was no probability that scoliosis of
> 31degrees (moderate curve) developed my symptoms, and that my  symptoms
>  were caused by mental condition. Is it true?
> 
>   What do medical circles of the United States and other countries
> think about the Japanese surgeons' opinion?
> 
>   Please give me some information, and introduce to suitable
> organizations  (including an e-mail address ). Please!
> 
>                      Name; Kazuyuki Ueda
>                      Sex; male
>                      Age; 34
>                      Work; Certified Public Accountant
> 
> 
> ------------------------Details---------------------------
> 
> [1] The name of a disease ; "idiopathic scoliosis"
> 
> - I don't know when my back bone curved.
> - When I was 20 years old, Ifound signs of scoliosis. I  got  lame in the
>   left leg  lightly, and soon exhausted.
> - But I felt easy about it, so these symptoms weren't serious as now.
> - In my college days, I had trained  "KARATE" for 2 years. After
>   that, symptoms took a  turn for the  worse ( 24 years old ).My muscle
>   got stiff and my head couldn't sit straight on my body.
> -Whenever I waiked for 5 minutes, I broke out in sweat even in
>   winter. I  was  so  exhausted.
> - For 2 years, I had treatment (osteopathy ) everyday, so I could
>   manage to keep daily life. But, I still  have some serious difficulties.
> 
> [2] Difficulties
> 
> (1) Difficulty in walking
>  - My heels can't touch the ground in walking, so I get so exhausted
>    in 5 minutes' walk. But I have not felt the lack of sensation in
>    my legs.
> 
> (2) Difficulty in standing
>  - One side heel doesn't touch the ground. - My lower body loses
>     strength.
>  - The upper right and lower left of the back get strained extremely.
> 
> (3) Difficulty in sitting
>  - In half an hour, I have difficulty in breathing.
> 
> (4) Other difficulties
>  - I always feel heavily oppressed in the upper body as if in a suit
>    armor.
>  - The upper right and lower left  of the back and the muscle are
>    strained extremely.
>  - The back of my neck is strained, so I have difficulty in breathing.
>  - In the evening ( after about 3 P.M. ), I have much more
>    difficulty in walking, and lose my arms' and legs' strength.
>  - When tiredness is heaped up, my body becomes feverish, and
>    furthermore "atopic dermatitis" appears. ( A secretion oozes.)
>  - I have to stay home all day 2 or 3 times a week.
> 
> [3] Doctor's opinion
> 
>  (1) Keio University ('95)
>  - Orthopedic Surgery
>    Check Up; X-ray, MRI
>    Opinion ; Scoliosis of under 50 degrees doesn't show such symptoms.
>  - Neuro
>    Check Up; A blood test, urinalysis, CT-Scan ( the brains )
>    Opinion ; No problem.
>  - Rehabilitation service
>    Check Up; My physical function tested by physical therapists.
>    Opinion ; Strains of the upper right and lower left of the
>                    back, and the muscle and ligament's unbalance causes the
>                    symptoms.
> 
>  (2) Tokyo University ('95)
>  - Orthopedic Surgery
>    Check Up; X-ray, MRI
>    Opinion ; Same as Keio University.
>  - Neulogy Psychiatry
>    Check Up; Mental Test, Interview
>    Opinion ; No problem.
> 
> (3) Juntendo University ('96)
>  - Orthopedic Surgery
>    Check Up; X-ray
>    Opinion ; Same as Keio University.
>  - Neulogy Psychiatry
>    Check Up; Examination ( mental and physical )
>    Opinion ; Unbalance of the muscle of the back causes such symptoms.
>          (Taking muscle-slackness medicine ( HorizonHr-5 )----ineffective.
> 
> (4) My home doctor says, " I guess that a curve like this develops some
>      symptoms."
> 
> (5) Asahi Shinbun, Science News Department ('96)
>  - A reporter said, " About 10 years ago, scoliosis raised a problem
>    at Chiba University. At that time, they reached the conclusion that
>    scoliosis of under 50 degrees and stop-progressed was out of a
>    subject of treatment."
> 
> (6) Welfare Center for the Disabled,  Tokyo ('97)
>  - The doctor in charge said, " I admit your symptoms, but your
>    disease doesn't apply to conditions  of a handicapped person
>    regulated the Ministry of Welfare, sorry."
> 
> (7) Pediatric orthopedician at Medical Center of Seatle.
>     (2 March 1997) /via e-mail
> - He said, "Your case and symptoms sound very complicated. I think
>   that it will be impossible for anyone to comment about your case
>   over the internet as we would need xrays and specific physical
>   examination findings to determine what your problems are.
>    Routine ideopathic scoliosis would not account for the majority
>   of the symptoms you describe. Patients with unusual symptoms
>   always are concerning for the possibility of an underlying spinal
>   cord or other central nervous system problem."
> 
> (8) International Federation of Scoliosis Association
>         (9 April 1997, Scoliosis@aol.com) /via e-mail
> - The person in charge said, "I don't know what we can add to help
>   your difficulties. As you have been told, a 31 curve is considered
>   a moderate curve and not generally know to cause the symptoms
>   you describe. It sounds like you have had a variety of exams(MRI
>   etc.) to diagnose any problems, and tried many treatments
>   including psychological. Until you are diagnosed perhaps you
>   should consult a pain management specialist to determine the
>   best approach to live with your condition."
> 
> [4] My treatment now
> 
> - I'm attending Neulogy Psychiatry (Kudanzaka Hospital) now.
>    A doctor in charg (Dr.Yamaoka) said that a 31degrees curve
>    triggered my descrived symptoms and that I could do nothing
>    but remove anxiety and wait for recovering a balance in mind
>    and body.
>     But he prescrived some medicine (Lexotan2,Ludiomil,Ternelin
>    and Halcion.)
>     But I hate drugs!
> - A healer ( massager ) comes home a week. ( an hour's treatment )
> - Swimming for an hour everyday.
> 
> -------------------------------------------------------
> 
>   I am wondering if my symptoms are caused by mental condition.
> After consulting many doctors and taking treatment by many
> healers  ( Chiropractic, KIKO, YOGA . .....etc ),  I have become to
> think that unbalance of the muscle and ligament causes my
> symptoms.
> 
>   You may suggest that I should try psycological treatment. But
> In Japan, a Psyco-therapist isn't admitted in health insurance.
>   Once I was attending French Psyco-therapist working in Japan.
> But a fee was about $100 an hour. It's so expensive!
>   So I stopped attending her after 7 times.
> 
>   I must support myself with working in Society.
> But it's so painful to me, because I get tired soon.
> 
>   What can I do more?
> -------------------------------------------------------------
> If you like, you read Marfan Network in Japan.
> http://www.asahi-net.or.jp/~wc8m-ktu/index.html
> 
> For help on using this list (especially unsubscribing), send a message to
> "scoliosis-request@ai.mit.edu" with one line of text: "help".

Kazz...
Sorry, I'm not a doctor or in any related field.  I just know a lot
about scoliosis.  Unfortunately, I've never come across any store like
yours.  I wish you the best of luck in finding an answer.
Linda

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"scoliosis-request@ai.mit.edu" with one line of text: "help".

------------------------------

From: johan jellesma <jgjelle@dds.nl>
Date: Wed, 2 Jul 1997 19:59:04 +0200 (MET DST)
Subject: RE: scoliosis V1 #486

i do not get the   bounce- scoliosis list which i have
subscribed since 1 year!
why?
johan jellesma

Op Tue, 1 Jul 1997, Richard A. Lethin schreef:

> I'm not sure what you're asking.
> 
> 
> 
> ----------
> From:  johan jellesma[SMTP:jgjelle@dds.nl]
> Sent:  Friday, June 27, 1997 10:12 AM
> To:  bounce-scoliosis@ai.mit.edu
> Cc:  lethin@ai.mit.edu
> Subject:  Re: scoliosis V1 #486
> 
> why do i not get the list?
> 
> johan jellesma
> 

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"scoliosis-request@ai.mit.edu" with one line of text: "help".

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End of scoliosis V1 #488
************************

