From: bounce-scoliosis To: scoliosis-digest@ai.mit.edu Subject: scoliosis V1 #697 Reply-To: Errors-To: bounce-scoliosis Precedence: bulk scoliosis Friday, 9 January 1998 Volume 01 : Number 697 Today's subjects for scoliosis and scoliosis-teens: Re: Copes? [Andrea Andrews ] Re: Broken rod [Andrea Andrews ] I was out of line. ["Paul Leger" ] Re: Fusion Info ["Henry" ] unknown unknown [Peter Van Hoorn ] me ["LIZT" ] Re: Paul ["Dean A. Hoppenrath, DC" ] Re: Fusion Info ["Dean A. Hoppenrath, DC" ] OT: Testing [pete ] Please....RESIST THE TEMPTATION! [Dan Hurley ] Re: Testing ["Sindy S Green" ] open minded ["carol lytle" ] Re: Back brace [ilikeeyore@juno.com (Amanda J Steffy)] Re: open minded ["Dean A. Hoppenrath, DC" ] Re: Copes? [Raymond Boucher ] I got my brace. [squishy@KingCon.com] Re: Back brace [Duckymone ] Re: I got my brace. [ilikeeyore@juno.com (Amanda J Steffy)] Re: Back brace [ilikeeyore@juno.com (Amanda J Steffy)] New Braces ["Rachel Freedenberg" ] Re: I was out of line. [Peggy ] Becky ["Swaney Family" ] Re: I got my brace. ["Swaney Family" ] Re: I got my brace. [Donna907 ] Re: Back brace [Linda Racine ] Kay Update [Linda Racine ] Kay Update [Linda Racine ] Re: I was out of line. [Teresa and Joe ] Re: scoliosis in middle age [Dawn Hromanik ] Re: I was out of line. [Dawn Hromanik ] i'm new! [Shaynie ] ICQ chat - subject, Scoliosis ["Henry" ] ICQ chat - subject, Scoliosis ["Henry" ] ---------------------------------------------------------------------- From: Andrea Andrews Date: Thu, 08 Jan 1998 08:20:08 -0800 Subject: Re: Copes? Peggy wrote: > > Thats too bad Lex, I have always enjoyed your posts. > > ... Peggy- I don't think I will go now. Maybe I just needed to hear I was still wanted and useful. Thanks! Lex ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Andrea Andrews Date: Thu, 08 Jan 1998 08:24:39 -0800 Subject: Re: Broken rod Don Zriny wrote: > > Hi, > My 6 year old daughter had scoliosis surgery last Feb. We found out that somewhere between > ... My rod broke less than 7 months after surgery. I would be glad to help you out with any kind of info. ! Lex ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Paul Leger" Date: Wed, 7 Jan 1998 16:43:31 -0400 Subject: I was out of line. I guess I was a bit out of line with some of my comments. However there are a few reasons why I feel this way. I have scoliosis. I have had three surgeries now and the pain just keeps getting worse and worse. I had to give up a career that I loved because I was no longer physically able to perform my duties. Now I am told that there is nothing left to be done and I should learn to live with the pain. The surgeons made a mistake with their procedures 28 years ago and now I am paying for those mistakes. Considering life expectancy that could translate into another 40 years or more of this. Am I bitter about the surgery? I guess I am a bit. I sure wish I had had surgery in more recent years when they have solved some of the earlier problems. However I end up defending not the surgery so much as the orthopedic profession. I still believe that the best solutions to the problem caused by scoliosis lay with these professionals. Perhaps one day they will figure out the way to correct flat back syndrome. There are several in fact that are trying out these corrective surgeries even now in both Germany and the United States. So there is hope in the future I guess. The medication, biofeedback, TENS, and a hundred other little things taught to me helped to make it through each day. Each little piece fit neatly into place in this struggle for pain management routine that worked. It used to be that this group also provided one of these pieces. It gave me some relief from the pain of daily living and offered a forum for pain management discussions. This mail list was/is supposed to be about support. Since last spring it has turned into a forum for alternative therapy. To me this group has descended into an advertisings medium for Copes. That is my solely my opinion of course. So I went a bit overboard with a few of my comments. Actually I was well meaning. The decisions made by parents over which course of action to pursue does affect the child in later life. The child in effect has to live with their decision. I hope that parents would consider all options very carefully before choosing something that inevitably will affect the whole course of their later life. I would hope that parents would seek professional orthopedic help before they considered alternative care. However that is not for me to decide. So this will be my last message to the list. I too have been thinking of unsubscribing for some time because of the direction that the list was going. Many others have issued the same sentiments. I guess I can't stand to watch the discussions without feeling somewhat emotional. So to all those that I offended I apologise. Paul Leger Amateur Callsign VE9NC Hampton, NB, Canada ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Henry" Date: Thu, 8 Jan 1998 09:21:04 -0500 Subject: Re: Fusion Info I was shocked to read that someone on the list has to respond with such hostility, and vulgarity. I believe that we all have to right to agree and disagree, but I do believe this is too much. Besides, if you have a comment to make, why TRY to hide your identity. If your going to say it, be proud of it and put your name under it, otherwise, its not worth saying at all. Richard, I am requesting that you consider removing this person from the mailing list. I am requesting that any other persons offended as much as I am by these postings also email Richard and request the same. Just for everyones FYI, the email address for the person making the following posts is: darkomega@hotmail.com Henry Berger bgrmystr@eagnet.com - -----Original Message----- From: unknown unknown To: scoliosis@ai.mit.edu Date: Wednesday, January 07, 1998 3:00 PM Subject: Re: Fusion Info > >First of all you need to learn how to spell, you said specially instead >of especially. That fusion stuff sounds pretty interesting, why don't > ... - -----Original Message----- From: unknown unknown To: scoliosis@ai.mit.edu Date: Wednesday, January 07, 1998 2:58 PM Subject: RE: Paul > >Why don't you just shut your mouth and nobody wants your opinion either. > > ... ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Peter Van Hoorn Date: Fri, 09 Jan 1998 01:30:25 +1500 Subject: unknown unknown Who do you think you are, maybe your name should be, Perfect Perfect. so what if anyone makes spelling mistakes, Its better than being rude and crude like you. There are kids on this list try Growing up or going to an Adult site, If you want to be vile and nasty. We dont need it. My nine year old read your filthy garbage and im not impressed. We are here for support ,and to give support if your not interested go away Vicki from Australia ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "LIZT" Date: Wed, 7 Jan 1998 21:14:30 -0800 Subject: me This is a multi-part message in MIME format. - ------=_NextPart_000_01BD1BB1.3E327F20 Content-Type: text/plain; charset=ISO-8859-1 Content-Transfer-Encoding: 7bit Great news for Kay!!! What was her curve and what kind of surgery did she have? Dr. Cowan took me off the brace on Friday, busy week at work so far so I have been sore trying to work out my back muscles to get them back in shape. Dr. Cowan expects me to start with my back extensions at 20 lbs and work my way up to 120 and 90 was the lbs I did before surguery. I am still doing well. Still on Ultram but down to once or twice a day. Did you hear from Bonnie yet? - ------=_NextPart_000_01BD1BB1.3E327F20 Content-Type: text/html; charset=ISO-8859-1 Content-Transfer-Encoding: quoted-printable

Great news for Kay!!! =  What was her curve and what kind of surgery did she have? =  
Dr. Cowan took me off the brace on Friday, busy week at work = so far so I have been sore trying to work out my back muscles to get = them back in shape.  Dr. Cowan expects me to start with my back = extensions at 20 lbs and work my way up to 120 and 90 was the lbs I did = before surguery.  I am still doing well.  Still on Ultram but = down to once or twice a day.

Did you hear from Bonnie yet?

- ------=_NextPart_000_01BD1BB1.3E327F20-- ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Dean A. Hoppenrath, DC" Date: Thu, 8 Jan 1998 09:35:50 -0600 Subject: Re: Paul Paul, >If you want to go out and scream from the highest building that Copes is the >answer to all people's problems then I guess you have the right. No one has ever made that claim. No one here has even said outright that Copes is the Best choice, just the best choice for them. I equally >have the right to tell you that this is quackery. You are correct. You have the right to say what you want. However, to accuse a method of being quackery is just a cop out. The AMA was found guilty of slander in the 80's for their ideas against chiropractic BECAUSE IT HAD NO BASIS IN TRUTH. The quakery cop out is just a way of saying that you know nothing about the topic. You don't seem to like >medical technology much prefering to support Copes. Well my question is how >much are you making off of this stand? What's in it for you? You really seem >to be well versed in defending this foolishness. You obviously don't know peggy too well do you? No one here has a vested interest in the Copes Foundation. No one here works for copes, no one here is a Copes doctor. Just because someone believes in something, that does not mean that they are profitting from it. She and her daughter have been through more medical technology then you will see in your lifetime. > >My attitude in this matter stems from the premise that if an adult is seen >hurting a child then that adult is obligated to do something. You want to > ... No one is abusing children, my friend. We all care for children and that is why we make the choices we do. How do you define "Proper Medical Care"? Is it - seeing a surgeon when you have a sniffle? Is it - Everyone with scoliosis should go through surgery? Or is it - Everyone should at least see a physician? Because if it is the latter, I agree. And those going through Copes HAVE seen a lisenced physician...I am a lisenced physician. And I for one, think you couldn't be further off the base if you tried. > >You want to defend Copes.... I can defend the established medical practice >and procedures. If you don't like that well I guess you had better find > ... "Defend the established medical practice"? All the techniques that you so proudly flaunt started outside of the "established medical practice". Just because you do not agree that something is so, does not make it false. Thank God Copernicus didn't think like you or we may all still be sitting on this flat planet with the sun and stars revolving around us! You don't have to change. Like everything else in the world that does not evolve, you will just dissappear and die off. Rest in Peace Dr. Dean ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Dean A. Hoppenrath, DC" Date: Thu, 8 Jan 1998 09:36:29 -0600 Subject: Re: Fusion Info I second the motion! Dr. Dean - -----Original Message----- From: Henry To: scoliosis@ai.mit.edu ; Richard Lethin Cc: lethin@etcons.com Date: Thursday, January 08, 1998 8:41 AM Subject: Re: Fusion Info > >I was shocked to read that someone on the list has to respond with such >hostility, and vulgarity. I believe that we all have to right to agree and > ... of >it and put your name under it, otherwise, its not worth saying at all. > >Richard, I am requesting that you consider removing this person from the > ... ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: pete Date: Thu, 08 Jan 1998 16:26:09 +0000 Subject: OT: Testing Just testing... Did this message make the list? ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Dan Hurley Date: Thu, 8 Jan 1998 15:09:56 +0000 (EST) Subject: Please....RESIST THE TEMPTATION! This list is a tremendous resource. It's value is directly proportional to the percentage of content that offers information/insight that is useful to the other members. When someone injects a post that offers ZERO value other members, it is tempting to post a response that expressed our collective annoyance at the author. PLEASE DO NOT INDULGE THIS TEMPTATION.. it only compels the original author to prove how clever he/she is with an even more clever response. As a recent poster explained quite honestly, an eloquent post will not change him. All of us who find this list extremely valuable share your feelings. It goes without saying. Dan ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Sindy S Green" Date: Thu, 8 Jan 1998 14:29:37 -0000 Subject: Re: Testing Hi Pete! Yes, you came thru loud and clear. What's up?? - -----Original Message----- From: pete To: scoliosis-medical@ai.mit.edu Date: Thursday, January 08, 1998 6:29 PM Subject: OT: Testing > >Just testing... >Did this message make the list? > ... ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "carol lytle" Date: Thu, 08 Jan 1998 12:44:39 PST Subject: open minded With all due respect, Dr. Dean, alot of us have "been there, done that" and alternatives didn't work for us or we researched and didn't feel certain alternatives were fit for us. I am all for learning absolutely everything out there that is available with total open-mindedness, but my POINT is geared at the suggestion that the surgery intended individual could be taking it "lightly". That is what your posting said. I honestly don't mean to be difficult with you (seems we have had our disagreements), but I guess I get my feathers ruffled a bit when someome may suggest that just because of our decision to have surgery, (which by the way, is by far the most difficult decision I hope I will ever have to make in my lifetime), we haven't researched everything else completely. That is where the lines are always drawn on this site and disagreements tend to erupt. I would love to hear more success stories on the other alternatives, to educate myself as well as my children since this medical problem looks like it stays with families for generations to come. Carol ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: ilikeeyore@juno.com (Amanda J Steffy) Date: Thu, 8 Jan 1998 15:19:20 -0600 Subject: Re: Back brace My first couple of days at school were okay. Some people said some things but others justn asked questions like what happened to you and stuff like that. There is a girl at my school who also wears a brace but hers is different and doesn't have the neck thing. Hers goes right under her arms and dow to her butt but in the back it goes up to her shoulders. She had it at the beginning of the year and at first you couldn't really tell only that she looked a little heavier than before. She sits in front of me and sometimes when she is sitting you can see the top of the brace in the back poke out. Also when she can't bend down so she would have to croutch down if she dropped something. Now sometimes she even wears clothes that show the top of the brace in the back or shirts that when she moves show her belly which is really her brace. At first I was real curious about it and one time I accidently hit her on the back with a pencil. It made a loud noise and everyone in the class looked. That was before I found out that I had to wear one too. I didn't find out I even had scoliosis until the monday before christmas and then they saqid you have to get a brace in 2 weeks and I did. The girl and I are now getting to be good friends. Sometimes people say that we are the brace twins which doesn't bother me but others say oh look out here come those two ugly girls in the gross armor. I don't know why but the neck ring makes me walk a little different and I have to scoot the chair back really far to do work or eat and sometimes people will walk weird or scoot their cahirs back just to make fun of me. I try really hard not to pay attention to them. Did you ever get made fun of? Well I guess that's all I have. Carrie For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Dean A. Hoppenrath, DC" Date: Thu, 8 Jan 1998 15:38:04 -0600 Subject: Re: open minded Carol, I understand your point and perhaps the term lightly is not what I was looking for. What I mean is that often times (and I see it more in surgery for herniated discs than anything) people embrace the current medical model and, though they KNOW the risks, they tend to either overlook the alternatives, are TOLD to overlook the alternatives (like people saying chiropractic won't work etc.), or just plain don't know about the alternatives. I am sorry if it sounded like I was saying that if you're choosing surgery they you just don't know, because I know you know; and I know MOST people know; but, I also know that not EVERYONE knows. In fact I had a mother who is on this list who is a lurker who wrote me privately thanking me because she had no idea about chiropractic and she and her son were both feeling better after a few weeks worth of treatment. It is THESE people I am trying to get the point across to. I am not saying Surgery is horrible and chiropractic cures all...I am saying that they often times work together and make things go smoother; and if there is a chance to avoid surgery, I would be willing to try it FIRST even if it means higher risks if it fails...Because if it succeeds, then there is hardly any risk at all. Do you follow me cause this is a little rambly for me...Hope this clears it up. Dr. Dean - -----Original Message----- From: carol lytle To: scoliosis@ai.mit.edu Date: Thursday, January 08, 1998 3:17 PM Subject: open minded > >With all due respect, Dr. Dean, alot of us have "been there, done that" >and alternatives didn't work for us or we researched and didn't feel > ... ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Raymond Boucher Date: Thu, 08 Jan 1998 19:06:44 -0400 Subject: Re: Copes? > You are wanted and useful Raymond > I don't think I will go now. Maybe I just needed to hear I was still > wanted and useful. Thanks! > Lex > ... ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: squishy@KingCon.com Date: Thu, 8 Jan 1998 19:07:06 -0500 Subject: I got my brace. reply to Carrie who just got her brace: Hang in there!!! For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Duckymone Date: Thu, 8 Jan 1998 20:01:12 EST Subject: Re: Back brace Yeah Carrie - I got made fun of a whole lot!!! People used to call me turtle though cuz my brace was kinda like a shell. After a while people will notice it's just not funny at all & it's really pretty mean & they'll stop. I had the one like the girl that sits in front of you... people would alwayz come up behind me & knock on my brace to get my attention. After a while I got used to it & every time somone did it I would answer them & laugh. Hope everything goes well with your brace... wish me luck, my surgery is in 5 days!!!! Crystal. For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: ilikeeyore@juno.com (Amanda J Steffy) Date: Thu, 8 Jan 1998 19:51:40 -0600 Subject: Re: I got my brace. Thanks. Do you wear a brace? just wondering. Thanks again. carrie For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: ilikeeyore@juno.com (Amanda J Steffy) Date: Thu, 8 Jan 1998 19:50:49 -0600 Subject: Re: Back brace good luck I didn't realize your surgery was so close. Do you have to wear a brace after your surgery? I know some people that did. Just wondering. Talk to you later. Carrie For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Rachel Freedenberg" Date: Thu, 08 Jan 1998 17:51:30 PST Subject: New Braces Carrie, Forget those people who tease you. They're jerks. I don't know anyone who has a brace! None of my friends do, and no one in my school does, I don't think (unless they wear it after school because I've never seen anyone wear it in school). I have a Boston Brace which sounds like the one that the girl in your class has. It's pretty unnoticeable but hurts a lot, especially in the beginning. And the "pads" they put in don't help a bit! Anyway, keep me updated on your condition! If you have any questions, e-mail me at: rachelaf@hotmail.com - -Rachel- ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Peggy Date: Thu, 08 Jan 1998 21:08:03 -0800 Subject: Re: I was out of line. Paul, It is undertandable that you feel strongly on issues concerning scoliosis, we all do. It is very big of you to apologize, and I should apologize for my unkind tone in my last response. As far as feeling bitter, I am sure it is not a rare sentiment for people who have gone through as much as you have. I think it would be a mistake for you to leave the list. If the alternative methods are something that you abbsolutely don't want to hear about, you could look for support on the "medical" list. I would prefer you stayed here though because I believe you have a lot to offer. Unless I read wrong you have been to cronic pain clinics and are utilizing a kind of bio-feed back to help relax and alleviate the pain. There are many on this list suffering from cronic pain as you are and would benefit from any tips or experiences you can share here. Likewise there are many who have tips and experience to offer you. I hope you reconsider leaving the list. We are not out to advertise Copes, in fact many of the users ocassionally air their gripes too. We are not trying to talk anyone out of surgery either. People who go that route have given it long careful consideration and decided on surgery from the options they have explored. As I said scoliosis is really just one symptom that presents due to many varied causes, from what I can tell no two cases are exactly the same, that is why treatment, either surgery or bracing or any other alternative are not necessarily going to work the same way for every individual. Your treatment must be tailored to your case. But your experience provides valuable information for others to hear, research further and hopefully benefit from. Just so you know Natalie has seen Orthopedic Surgeons, Neurosurgeons, Chiropractors, and Phsyical Therapists. The Neurosurgeon performed surgery on her brain and spine, the Orthopedic surgeon wouldn't want to operate until she was older even if I opted for that and the bracing program he recommended took into account neither exercise nor nutritional aspects and the brace was not a good fit for her. He also stated that he fully expected her curve to worsen in the brace he recommended. When we embarked on the program she is in we did it as skeptics thinking that if it did not provide valuable results we would drop out in 6 months. As you know we didn't drop out because she got wonderful benefits. The last paragraph was just to alleviate your concern that we blindly chose an alternative approach without careful consideration of her options. This has been our obsession finding just the right approach for her individual case. Just as it has been yours to find the right combination of things that work for you. No sympathy or pity thrown your way, it is obvious you are pretty strong and will do just fine. But I would trade stories with others on the list in your same circumstance if I were you, it helps on all sides. Peggy ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Swaney Family" Date: Fri, 9 Jan 1998 16:11:03 +1300 Subject: Becky Hi Laurie & Becky - I have been on holiday for the last two weeks, and I can't remember when Becky is having her surgery. Has she already had it? If she has, I hope everything went well, and that she is doing great - if she hasn't had it - good luck, I'm thinking of you, and Becky, I bet you're scared now, but don't worry about it - it will be a lot better than you actually think it will be. I was soooooo scared going up to my operation date - but when it was over I realised I had been worrying about nothing - so keep your spirits up - would love to hear from you - From Pip For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Swaney Family" Date: Fri, 9 Jan 1998 16:14:07 +1300 Subject: Re: I got my brace. Sue - Gald to hear that you are doing great (sorry this is a bit late - I have been on holiday for two weeks and haven't been able to check my mail) Pip For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Donna907 Date: Thu, 8 Jan 1998 22:22:13 EST Subject: Re: I got my brace. I think your a very brave girl. My daughter also wears a brace. Noone has ever made fun at her. I am happy for that. She is very sensitive .People that make fun at you, dont know any better.You have to feel sorry for people like that. Hang in there. Walk with your head up high. For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Linda Racine Date: Thu, 08 Jan 1998 19:30:20 -0700 Subject: Re: Back brace Hi Carrie... Glad you have a brace buddy at school. If someone says something rude to either of you, tell them to get a life. Linda For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Linda Racine Date: Thu, 08 Jan 1998 19:40:32 -0700 Subject: Kay Update Hi all.... Just got back from my last visit with Kay. She gets to leave the hospital tomorrow. She'll stay overnight locally, and then is taking the train (Yikes! she won't fly) to southern California on Saturday. She'll be going to her own home, where a friend will be living with her for at least the next several months. She's doing really great, and looks like a different person. She sat up on the edge of the bed for several hours. Something I couldn't do for months after surgery. She's got a great mental attitude and seems to be ecstatic to be getting out. She wanted me to tell everyone hi and that she isn't crazy any more. Regards, Linda ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Linda Racine Date: Thu, 08 Jan 1998 19:40:32 -0700 Subject: Kay Update Hi all.... Just got back from my last visit with Kay. She gets to leave the hospital tomorrow. She'll stay overnight locally, and then is taking the train (Yikes! she won't fly) to southern California on Saturday. She'll be going to her own home, where a friend will be living with her for at least the next several months. She's doing really great, and looks like a different person. She sat up on the edge of the bed for several hours. Something I couldn't do for months after surgery. She's got a great mental attitude and seems to be ecstatic to be getting out. She wanted me to tell everyone hi and that she isn't crazy any more. Regards, Linda ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Teresa and Joe Date: Thu, 08 Jan 1998 22:03:59 -0800 Subject: Re: I was out of line. > This mail list was/is supposed to be about support. Since last spring it has > turned into a forum for alternative therapy. To me this group has descended > into an advertisings medium for Copes. That is my solely my opinion of > ... Paul, you are not the lone ranger. That was my exact opinion when I first started on this list in October. I kept it in the back of my mind, but still read on because there ARE very kind and sincere people on this list, too. People have helped me and I hope I have helped some people, too. It is nice to be able to talk to people who have similar problems with me. It is a wonderful thing, but every day when I check my messages, all I see is "Copes this and Copes that". I just don't read them most of the time. Teresa. ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Dawn Hromanik Date: Thu, 20 Nov 1997 15:07:38 -0600 Subject: Re: scoliosis in middle age My chiro regrered me to a neurologist when I came in because the right side of my face and arm was numb and tingly. But then the neuro got really defensive and said it was either him or the chiro treating me, not both. He doped me on the standard meds,..... steroids, pain killers, and muscle relaxants,...needless to say they didn't work and I've never been back to him. Dawn At 10:50 PM 1/7/98 -0800, Peggy wrote: > >Dean A. Hoppenrath, DC wrote: >> > ... ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Dawn Hromanik Date: Thu, 20 Nov 1997 15:07:42 -0600 Subject: Re: I was out of line. Hi Paul, read your post agreeing with alot you had to say, understanding your frustration. After bracing 18 years ago, I too think they were "experimenting", not really knowing what the outcome 20 years down the road would be. I've been told I have to learn to live with the pain. WHY!????!!!??? I ask! Why should I live with headaches, stiff burning neck and a back that "pops" out when it wants to? At 04:43 PM 1/7/98 -0400, Paul Leger wrote: > . Now I am told that there is nothing left to be done and I should >learn to live with the pain. The surgeons made a mistake with their >procedures 28 years ago and now I am paying for those mistakes. ------------------------------ From: Shaynie Date: Fri, 9 Jan 1998 01:17:49 EST Subject: i'm new! hi all: i just want to introduce myself - my name is shayna, and i had harrington rods implanted in 1980 after a couple years of unsuccessful bracing. i'm now 30, and although the surgery was successful, i do have quite a bit of discomfort, stiffness, and soreness. i'm sure much of this can be attributed to an auto accident i was in in '91, because before that, i really don't recall having much discomfort at all. if anyone has any suggestions or advice as to what i can do to get some relief, i would greatly appreciate it (i'm trying to steer clear of prescription medication.) also, does anyone have any information about copes bracing for post-surgical patients, to resolve the residual curvature, and hopefully help with some of this pain? best wishes for a great new year filled with love and happiness to all of you! shayna ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Henry" Date: Fri, 9 Jan 1998 01:21:09 -0500 Subject: ICQ chat - subject, Scoliosis This is a multi-part message in MIME format. - ------=_NextPart_000_0057_01BD1C9C.DD81F740 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable Just a REMINDER (again!)... we're having another chat session on ICQ = (uin 4087834 - if you dont have ICQ, go to www.mirabilis.com or = www.icq.com ) .. January 9 (Friday) starting at 9pm U.S. Eastern time = zone .. all are invited to attend ... email me, or send a message (icq = uin 383711) if your not sure about the time where you live, or check = out this link for a comparison in current time ..=20 http://www.west.net/~lindley/zone/ use New York, US for my time zone ..=20 cyall, Henry - ------=_NextPart_000_0057_01BD1C9C.DD81F740 Content-Type: text/html; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable
Just a REMINDER (again!)... we're = having another=20 chat session on ICQ (uin 4087834 - if you dont have ICQ, go to www.mirabilis.com or www.icq.com ) .. January 9 (Friday) = starting at=20 9pm U.S. Eastern time zone .. all are invited to attend ... email me, or = send a=20 message (icq uin 383711)   if your not sure about the time = where you=20 live, or check out this link for a comparison in current time ..
http://www.west.net/~lindley/= zone/
use=20 New York, US for my time zone ..  
cyall, = Henry
- ------=_NextPart_000_0057_01BD1C9C.DD81F740-- ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Henry" Date: Fri, 9 Jan 1998 01:21:09 -0500 Subject: ICQ chat - subject, Scoliosis This is a multi-part message in MIME format. - ------=_NextPart_000_0057_01BD1C9C.DD81F740 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable Just a REMINDER (again!)... we're having another chat session on ICQ = (uin 4087834 - if you dont have ICQ, go to www.mirabilis.com or = www.icq.com ) .. January 9 (Friday) starting at 9pm U.S. Eastern time = zone .. all are invited to attend ... email me, or send a message (icq = uin 383711) if your not sure about the time where you live, or check = out this link for a comparison in current time ..=20 http://www.west.net/~lindley/zone/ use New York, US for my time zone ..=20 cyall, Henry - ------=_NextPart_000_0057_01BD1C9C.DD81F740 Content-Type: text/html; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable
Just a REMINDER (again!)... we're = having another=20 chat session on ICQ (uin 4087834 - if you dont have ICQ, go to www.mirabilis.com or www.icq.com ) .. January 9 (Friday) = starting at=20 9pm U.S. Eastern time zone .. all are invited to attend ... email me, or = send a=20 message (icq uin 383711)   if your not sure about the time = where you=20 live, or check out this link for a comparison in current time ..
http://www.west.net/~lindley/= zone/
use=20 New York, US for my time zone ..  
cyall, = Henry
- ------=_NextPart_000_0057_01BD1C9C.DD81F740-- ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ End of scoliosis V1 #697 ************************ The scoliosis-digest is a daily encapsulation of messages sent to BOTH the scoliosis and scoliosis-teens mailing lists. You can determine which list a message above was posted to by looking at the message footer. For help on using the scoliosis-digest, (especially unsubscribing) send an electronic mail message to "scoliosis-digest-request@ai.mit.edu" with one line of text: "help". To post your own message to the scoliosis, send an electronic mail message to "scoliosis@ai.mit.edu". To post your message to scoliosis-teens, send it to "scoliosis-teens@ai.mit.edu". Also, see the scoliosis web page at "http://www.ai.mit.edu/scoliosis/scoliosis.html".