From: bounce-scoliosis To: scoliosis-digest@ai.mit.edu Subject: scoliosis V1 #784 Reply-To: Errors-To: bounce-scoliosis Precedence: bulk scoliosis Thursday, 2 April 1998 Volume 01 : Number 784 Today's subjects for scoliosis, scoliosis-medical, scoliosis-child and scoliosis-teens: scoliosis and diving ["Natasha Willmott" ] Charleston Bending Brace [Brent Houston ] Re: physical therapy and scoliosis [Elizabeth Mina ] Re: =) [Beck301176 ] Private conversations [Choctaw Maiden ] A good quote for how people feel [Richard Lethin ] Re: Yoga -Reply [Kate Hauer ] [none] ["Devlin, Colette" ] Re: A good quote for how people feel ["Dean A. Hoppenrath, DC" ] Re: A good quote for how people feel -Reply [Kate Hauer ] Re: A good quote for how people feel -Reply [Jessie Deyoe ] Re: A good quote for how people feel -Reply ["Dean A. Hoppenrath, DC" ] Re: Re: Problems In The Sacral Area: [Christi LB ] Re: who are y'all ["Arinya N. Janes" ] Re: scoliosis and diving [dwater@pacbell.net] Re: Charleston Bending Brace [TravlnWmn ] Re: who are y'all [ilikeeyore@juno.com (Amanda J Steffy)] Re: who are y'all [Dc2kris ] Re: who are y'all ["jennifer lytle" ] Re: who are y'all [Dc2kris ] Re: Kristen [wrightaway ] Re: =) [wrightaway ] Re: who are y'all [wrightaway ] Re: birth control pills [Prf Bones ] Re: who are y'all [Mercy106 ] Re: who are y'all [Pegleg6305 ] samarah/peggy [Pegleg6305 ] Intoduction from Singapore [BK Tan ] brace pics [Pegleg6305 ] Frank [Linda Racine ] Re: birth control pills ["A & S G." ] Re: Frank [Lilbit0603 ] Re: samarah/peggy [wrightaway ] Re: samarah/peggy [Lobo ] Pain ["Arinya N. Janes" ] ---------------------------------------------------------------------- From: "Natasha Willmott" Date: Wed, 1 Apr 1998 12:03:39 GMT Subject: scoliosis and diving Hello, I am sending this request out for information as I'm not too sure my email made it to the list yesterday. Sorry if it did and I'm repeating myself! I'm looking for any information on whether it is possible to go diving with scoliosis. I had my surgery in Nov 96 and have been playing with the idea of diving ever since but I don't know much about it with regards to scoliosis and how to go about things. If anyone on the list has any information or has been diving I would be really grateful. Natasha ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Brent Houston Date: Wed, 01 Apr 1998 07:09:14 -0500 Subject: Charleston Bending Brace Nancy, My daughter has a 29 deg. lumbar curve and it was discovered when she was 12. They monitored her for a year and it didn't progress past 29 deg. They felt she still had a lot of growing to do, (and since you grow while you are sleeping), that she should use the CBB and hope it would stop the progression of the curve. Karen Houston ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Elizabeth Mina Date: Wed, 01 Apr 1998 09:11:32 -0500 Subject: Re: physical therapy and scoliosis Dear Pip, I have had tremendous problems finding a physical therapist who is prepared (or has absolutely any experience) in treating people with spinal fusions for scoliosis. This may be because I live in the boondocks of northwestern NJ, but it's more likely that they do not see too many people like us. I went out and interviewed the P-Ts at all centers within 15 miles of my home & got all kinds of reactions to how they would treat me if I were to become their patients, from extreme forms of exercise to training with certain exercise to be done at home. (Meanwhile my spinal surgeon was saying that I will need lifelong gentle P-T in order to maintain any kind of life with walking, etc.) When I finally found one who was responsive & willing to apply her knowledge to a new situation, it took her some 3-4 months of 3 times weekly visits to get a good handle on how my muscles were working with the fusion's intervention. (Virtually none of them respond normally to standard exercises, & some are "unreachable" due to their immobility.) Unfortunately she got sick herself & I have been floundering. I tried another very highly recommended therapist who teaches P-T at U Medicine/Dentistry of NJ, who kept insisting my situation wasn't that bad until she overstretched my legs so much that the nerves at L-4 flared to an unbearable level of pain. She didn't even realize what she was doing & kept doing it, no less! I ended up spending 4 weeks in bed, having suicidal thoughts, & having to get a nerve block just to start bringing me back out of the woods. I guess the message here is: BE CAREFUL!! P-Ts are unfamiliar with spinal fusions & what they do with your muscles, so you have to be the monitor & play it very carefully. Elizabeth > > l need information about the kind of treatmet physical therapy has to > offer scoliosis patients.Any Reference will do > ... ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Beck301176 Date: Wed, 1 Apr 1998 09:34:05 EST Subject: Re: =) Samarah 1 wow finally someone i am taller than lol Becky For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Choctaw Maiden Date: Wed, 1 Apr 1998 04:47:22 -0800 (PST) Subject: Private conversations Is it possible for the 1 and 2 line private notes from 1 person to another, specifically meant for them, to be sent to them only and not the entire list and/or digest? My mailbox is cluttered up with "hi-how ya doings?" and "oops--sorry, my puppy came in", etc. Instead of hitting reply--which sends it to the entire list--just cut and paste the person's address and send it to them. Keep the list for information that applies to everyone. If, by some chance, the list is designed to automatically duplicate, then it ought to be changed. Just my 2 cents worth!!! _________________________________________________________ DO YOU YAHOO!? Get your free @yahoo.com address at http://mail.yahoo.com ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Richard Lethin Date: Wed, 01 Apr 1998 10:20:57 -0500 Subject: A good quote for how people feel >"Curiosity doesn't matter any more. These days people don't want to be >transported to emotional territories where they don't know how to react." Dean, that's completely bunk. Curiosity rules these days. The huge exponential growth of the web as people race to surf the wealth of information. The enormous outlays for scientific research in genetics. The tremendous flow of investment in technical development. Artistic expression and independent film. The criticism of alternative medicine is about exposing the techniques that people use to exploit ignorance and confuse others and create social mischief. Recovered memory. Facilitated learning. Touch healing. Alternative medicine is big business, and to cry foul and criticize the other party of ignorance is transparent disingenuity. Sometimes it takes a curious child to see through the web. See today's New York Times. http://www.nytimes.com The article starts: "Two years ago, Emily Rosa of Loveland, Colo., designed and carried out an experiment that challenges a leading treatment in alternative medicine. Her study, reported Wednesday in the Journal of the American Medical Association, has thrown the field into tumult. Emily is 11. She did the experiment for her fourth grade science fair. " ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Kate Hauer Date: Wed, 01 Apr 1998 09:39:56 -0600 Subject: Re: Yoga -Reply Hi hcm! If you look up the IYNAUS website, it talks about how Iyengar teachers become certified. I begin teacher training in August. You have to study under a certified teacher. To become a beginning instructor, you must learn 48 asanas or poses, inside and out. Be able to teach them and know all of the movements of these poses. They judge you on how you teach a yoga class and you have to take a written test about all of the poses. For each level of certification, there are additional asanas you must learn. If someone is a certified Iyengar teacher, you know they have experience teaching and knowledge of what they are doing, the proper alignment in each pose. Not all yoga teachers have extensive training. If yoga is not taught correctly, people can get injured by un proper alignment. Like you could mess your knee up if you keep doing a movement that is not correct. I'm glad you are interested. kate ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Devlin, Colette" Date: Wed, 1 Apr 1998 11:17:02 -0500 Subject: [none] Hi there! I have been lurking for a couple of months now have a few questions. I must say that I find most of the info really informative. My daughter who is almost 17 was diagnosed with scoliosis 3 years ago with a 38 degree thoracic curve. Up to this point it has not progressed but she is experiencing occasional pain in her back and legs. She has only been followed, because she was fully grown at the time of diagnosis. She also has enjoyed reading this digest. Last month, my 13 year old son was diagnosed with a 14 degree thoracic curve. He will be seen again in 4 months to see if there is any progression. He was born with VCFS (velo-cardio-facial syndrome) which one of the characteristics is congenital heart disease (he has Tetralogy of Fallot) and has had open-heart surgery for this 10 years ago. The doctor we saw says his scoliosis is more than likely hereditary, but it is not uncommon to see scoliosis in children who have had heart surgery. Of the many characteristics of VCFS one that is not common from the research I have done is scoliosis. Anyone out there whos' had open-heart surgery or VCFS or know anything similar? Colette ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Dean A. Hoppenrath, DC" Date: Wed, 1 Apr 1998 11:53:43 -0600 Subject: Re: A good quote for how people feel Rich, I agree that "touch therapy" is crap...there has never been a study that showed otherwise...What I am referring to here is the "I don't agree with you about chiropractic so I won't let you talk on our list" that a certain person has on the med list. I find it interesting that the list was made for "scientific" purposes and that when I send 5 scientific journal articles over there they never get on simply because they were sent by a chiropractor. You are right, alternative medicine is big business. And I thing the quote does apply to everyone...on both sides of the argument. People tend to disagree with things that are different from what they do. For example, I am a Pepsi guy, I can't understand why anyone would like coke. It really is that simple...people do not like to be wrong or to defend what they did/ are doing to others when they are not prepared to do so. If this was a soda list, certain people would want to make a soda-coke list so that I couldn't talk about Pepsi, or heaven forbid, Jolt (the alternative cola)! Ok I am way out there now I better stop. Dr. Dean - -----Original Message----- From: Richard Lethin To: scoliosis@ai.mit.edu Date: Wednesday, April 01, 1998 9:35 AM Subject: A good quote for how people feel > >>"Curiosity doesn't matter any more. These days people don't want to be >>transported to emotional territories where they don't know how to > ... ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Kjartan Hovland" Date: Wed, 1 Apr 1998 20:44:27 +0200 Subject: Re: Open-heart surgery and scoliosis. Hi. Yes, I had open heart surgery, when I was 2 days old.. Now I am 20 years old, and I have scoliosis to. Inn Norway (my home country) the doc’s have seen that loot of people that had open-heart surgery when they was kid, developed some kind of scoliosis/kyfosis. And that they had to use a brace some time in life. In my case, the doc think that my scoliosis is from when they "cut my ribs" to get to the heart. - -Kjartan ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: TravlnWmn Date: Wed, 1 Apr 1998 13:48:06 EST Subject: Re: Rib Hump? Auna, Katie is 12 and just got her brace last week. There are several other families I know on the list with girls all about your age who are also wearing braces. Even though Katie is new with this also, I'm sure would love another penpal. What's the best way for her to email you.....this screen name or Mercer106? Nancy ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Kate Hauer Date: Wed, 01 Apr 1998 13:10:02 -0600 Subject: Re: A good quote for how people feel -Reply Dr. Dean and Rich, I believe in the healing qualities of touch. I just read today an article about a little girl who did a science project proving touch therapy is not real. I think it doesn't work if you don't believe it will work. I am a massage therapist and one of the reasons a massage feels so good is the nurturing you recieve from the therapist. There have been studies done about babies that are never touched compared to babies that recieve the nurturing they need. The babies that are held are happier, healthier and don't cry as much. I can't quote any statistics or quote any specific articles, this just seems like common sense to me. This may seem like new age thinking, I find it to be true. We are energy with energy fields surrounding us. I am certified in Reiki healing, which is healing by the laying on of hands. This is not scientific. It is human nature. It is wonderful to have an open mind. kate ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Jennie Perry" Date: Wed, 01 Apr 1998 11:56:49 PST Subject: who are y'all Hi my name is Jennie. I have been on this list for 6 months to a year Since there have been quite a few new subscribers I figured we should all answer a few questions so we can all get to know where we are all coming from. Some Questions: 1) Name 2) Age 3) location 4) Treatments had or will have 5) degree of curve 6) ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Jessie Deyoe Date: Wed, 1 Apr 1998 13:05:35 -0700 (MST) Subject: Re: A good quote for how people feel -Reply I, too, believe in the healing power of touch. I was amazed to learn that "touch therapy" did not involve actually touching the person! Live and learn---------- Jessie ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Beck301176 Date: Wed, 1 Apr 1998 15:09:45 EST Subject: Re: who are y'all Becky 14 Mass surgery im not sure the degree not but i had two one a 44 and one a 56 For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Dean A. Hoppenrath, DC" Date: Wed, 1 Apr 1998 14:37:21 -0600 Subject: Re: A good quote for how people feel -Reply Kate, This "touch therapy" is not the use of touch for therapy, rather it is the use of energy fields for the treatment of problems...Being a chiro, I feel very strongly in the therapeutic effects of touch...just not touch therapy. Dean - -----Original Message----- From: Kate Hauer To: scoliosis@ai.mit.edu Date: Wednesday, April 01, 1998 1:16 PM Subject: Re: A good quote for how people feel -Reply > >Dr. Dean and Rich, > > ... about >a little girl who did a science project proving touch therapy is not real. I >think it doesn't work if you don't believe it will work. I am a massage >therapist and one of the reasons a massage feels so good is the >nurturing you recieve from the therapist. There have been studies done > ... scientific. >It is human nature. > >It is wonderful to have an open mind. > ... ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: hmc Date: Tue, 31 Mar 1998 13:34:14 +0000 Subject: Re: birth control pills Leah-- I think the letter from Barbara that Natasha was referring to was on the med list. I looked for a copy to forward,but couldn't find one. Maybe someone else has saved it (hint, hint! %-) Why did the nurse want to know if you were on the pill? Does anyone know if there are surgical or scolisis complications from any of the hormone-based (pill or Depo-Provera) birth control methods? For various and asundry reasons (including extreme mood swings and awful cramps because of an estrogen/progsterone imbalance, I believe), it's been suggested I should start taking something Progesterone-based. But I can't find any info (and the ob/gyn sure doesn't know) on how that related to suregery recovery, esp. bone fusion and the like. What about curve progression and birth control? Pregnant women make lg. amt's of progesterone, and there curves often progress. Or is that because of the weight on the spine? I know I'm asking a lot of questions (as always)to which there may not be definitive answers. But any info or discussion is most welcomed! - --hmc. ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Christi LB Date: Wed, 1 Apr 1998 16:19:19 EST Subject: Re: Re: Problems In The Sacral Area: For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Arinya N. Janes" Date: Wed, 1 Apr 1998 15:25:15 -0600 (CST) Subject: Re: who are y'all A. Nikki Janes Pittsburg, KS 19--almost 20 Operation on 26 Nov 90 Operations to be held on 6 July 98 Don't know degree of curves, but both are pretty bad and identical For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: dwater@pacbell.net Date: Wed, 01 Apr 1998 13:50:30 -0800 Subject: Re: scoliosis and diving Natasha Willmott, The best place to get any information about recreational scuba diving and health issues is from DAN Divers Alert Network. They have been compiling a lot of information about diving for years. If there is any information about scoliosis and diving they would know it. Their Medical information phone number is 919 684 2948. Web site http:\\www.dan.ycg.org > > If anyone on the list has any information or has been diving I would > be really grateful. ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: TravlnWmn Date: Wed, 1 Apr 1998 17:16:39 EST Subject: Re: Charleston Bending Brace Karen, For some reason, I'm not able to get emails thru to your email address. Nancy ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: ilikeeyore@juno.com (Amanda J Steffy) Date: Wed, 1 Apr 1998 16:25:30 -0600 Subject: Re: who are y'all On Wed, 01 Apr 1998 11:56:49 PST "Jennie Perry" writes: >Hi my name is Jennie. I have been on this list for 6 months to a year Answers: 1) Name- Jean 2) Age-14 3) location- Tulsa, OK 4) Treatments had or will have- Milwaukee brace 2 weeks 5) degree of curve- I'm not really sure I think it's like between 30 and 35 _____________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com Or call Juno at (800) 654-JUNO [654-5866] For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Dc2kris Date: Wed, 1 Apr 1998 18:19:54 EST Subject: Re: who are y'all For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "jennifer lytle" Date: Wed, 01 Apr 1998 16:07:52 PST Subject: Re: who are y'all Jennifer 15 Arizona brace (boston for 5 years) surgery in june 1998 58 degree thoracic T4-L2 > >Some Questions: >1) Name > ... to >"scoliosis-teens-request@ai.mit.edu" with one line of text: "help". > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Dc2kris Date: Wed, 1 Apr 1998 19:22:19 EST Subject: Re: who are y'all mine didn't show up the first time! so i guess i'll do it again...=) Kristen 15----16 in exactly one week! =) California no treatment 26 degree curve...i'm not specifically sure what kind though. For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: wrightaway Date: Thu, 02 Apr 1998 16:32:29 -0800 Subject: Re: Kristen Peggy- I didn't say that surgery is the only cure (Because there is no real cure, only treatment) i said that surgery improves it the most. I have done a lot of research. So much, that it is overflowing a 2 1/2 inch binder. it is all from doctor's personal web pages, and hospiytal records, and real tests and real pictures of the effects of bracing and surgery. And, that was only my opinion. That is what i think, that is what most doctors think, but really there is no simple answer. - -Samarah1 For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: wrightaway Date: Thu, 02 Apr 1998 16:46:00 -0800 Subject: Re: =) Becky- I know how you feel. When those 7th graders came, i felt like a giant! - -Samarah For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: wrightaway Date: Thu, 02 Apr 1998 16:49:22 -0800 Subject: Re: who are y'all Jennie- Don't stop going by that! There is Jennifer on here, too. There is also another Samarah, wow! I can't believe it myself. Here are the answers to your questions: Samarah 13 North Bend Oregon Mil. Brace, 2 years at least 50 degrees, t-7 - -Samarah1 For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Prf Bones Date: Wed, 1 Apr 1998 20:13:46 EST Subject: Re: birth control pills Many birth control pills contain estrogen. Estrogen is linked to osteoblastic bone growth and slowing down osteoclastic bone resorption. FYI...The new drug Reloxifin by Lily mimics estrogen and acts on the nuclear estrogen receptor to stimulate bone formation without the potentially harmful effects of estrogen. I don't remember the original post so I hope this helps. ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Mercy106 Date: Wed, 1 Apr 1998 21:29:49 EST Subject: Re: who are y'all Auna 12 Colorado Bosten brace(i think) 32' those are the answer's to your questions:) Auna(mercy106@aol.com) For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Pegleg6305 Date: Wed, 1 Apr 1998 22:04:00 EST Subject: Re: who are y'all My name is Peggy. I am 20 years old.... from Indiana... I live about 20 minutes from Notre dame if that helps you put me on the map..... I wore a brace for 13 months when i was 13 and 14. I was supposed to have surgery and it has been cancelled twice..... someday... it's elective at this point and I elect to wait... I ahve two curves a 48 and a 52 or somewhere around abouts there..... For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Pegleg6305 Date: Wed, 1 Apr 1998 22:21:11 EST Subject: samarah/peggy samarah, I agree that there is no "cure" as such, but, I believe that surgery is not always necessary.. The research you have done I am impressed... However, you said that surgery improves it the most.... could that be because the cases that require surgery..... REQUIRE surgery?? Not all cases are in need of surgical procedures!! Peg For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: BK Tan Date: Thu, 2 Apr 1998 11:00:20 +0800 Subject: Intoduction from Singapore Hi all, My name is Tan Boon Kiat and I am from Singapore. U can call me Boon Kiat and Tan is my Chinese surname. I just happen to know the existence of this list when I am surfing in the internet, looking for interesting mailing lists yesterday. I was diagnosed to have a 57 deg. lumbar curve when I am 14 years old during a mass health screening for all secondary 2 students of Singapore. After countless visits to see the renowned doctor at that time, Prof Daruwalla, my parents have decided to opt for fusion surgery for my serious condition. Though I did not feel any distress at that time, I too feel that surgery is a long term solution for me to stop my condition from worsening any further. I am glad that my parents and myself have made the right decision. With the assurance of a few nurses and the professor himself, I was admitted into Singapore General hospital on the 19th Dec 1985, to be operated on the next morning. I have to undergo an 8 hour anaesthesia procedure and by the time I gain consciousness, it's already 8 pm. It's very painful for the next 2 days but subsided as days went by. The doctor has attached a rod to my spine together with 24 screws. I am told that they will be part of me and are for life. Though the doctor has reduced the curve to only 32 degrees, I behave just like a normal being except that I am advised against rugby and weight-lifting. Swimming tops the list of sports followed by squash and badminton. Occassionally, I may feel easily backache or that my back is easily strained if I stand or sqat too long. But slowly I try to do pull ups or push ups to strenghthen my spine. It works! U can see that ur condition starts to deteriorate if I stop jogging for a week. Ever since the ops, I have not lay down on my bed reading books or sit on the chair with one leg up. I try to stick to a jogging schedule or do pushups if the haze is too strong outside. That can help to straighten my back and I could feel the presence of my muscle at the left lumbar vertebrae ( my spine is curved to the right). Well, that's it and it's been a good 13 years. What worry me most is that I reached middle aged and wonder will the rod cause any hindrance to my movements. Well, I think that the best thing is to invest a few hours per week in sports and I am sure that will free me from a lot of discomforts in the days to come. regards, Boon Kiat ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Pegleg6305 Date: Wed, 1 Apr 1998 22:37:09 EST Subject: brace pics I checked out the pics of braces on linda's homepage. I think that the Boston is pretty much what those look like, but my milwaukee did not look like that.....it kinda had the bottom shape of a Boston and then a metal barin front, two in back, and a neck ring. I have also seen that style of Milwaukee and was hoping that is what I would have gotten..... Oh well... Live and learn........ But, I urge you to check out the pages if you haven't yet!!!! For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Linda Racine Date: Wed, 01 Apr 1998 19:40:34 -0700 Subject: Frank Hi all... Just got another message from Frank Robertson. His daughter, Angie, is doing as expected. She is getting through the horrors of immediate post-op physical therapy. And, according to Frank, seems to like all the attention she's getting. She's happy with how she looks; especially the 2" added to her height. He expects she'll be released from the Stanford as early as tomorrow. Regards, Linda ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "A & S G." Date: Wed, 01 Apr 1998 19:51:25 -0800 Subject: Re: birth control pills I attempted to look up the drug you are speaking of and you have spelled it incorrectly. It is Raloxifene and the brand name is Evista. Just in case anyone else wants to look it up on the Internet. Susan At 08:13 PM 4/1/98 EST, you wrote: > >Many birth control pills contain estrogen. Estrogen is linked to osteoblastic >bone growth and slowing down osteoclastic bone resorption. FYI...The new drug >Reloxifin by Lily mimics estrogen and acts on the nuclear estrogen receptor to >stimulate bone formation without the potentially harmful effects of estrogen. >I don't remember the original post so I hope this helps. > > ... ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Lilbit0603 Date: Wed, 1 Apr 1998 22:52:57 EST Subject: Re: Frank WOW...way to go angie....Hope all is going very well... Hang in there! ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: wrightaway Date: Thu, 02 Apr 1998 20:20:02 -0800 Subject: Re: samarah/peggy Peggy- I know that surgery isn't always nessecary, but when it is, it has a more percentage decrease in curve than the brace does, USUALLY, unless the curve is right where the brace can fix it, or the surgery has complications afterwords. That is what i was getting at, though surgry can be more painful after, the brace is painful as well, but mine has been hurting, very painfully, for 3 months. I heard that the pain from surgery only lasts 2 weeks-tops. Again, usually. With scoliosis, it is so different from person to person, you can't really be sure. - -Samarah1 For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Lobo Date: Wed, 01 Apr 1998 22:36:04 +0000 Subject: Re: samarah/peggy wrightaway wrote: > > Peggy- > > ... Hard to find a surgery that hasn't had some post problems-either right after wards or 10-20 years later. That is what i was getting at, though surgry > can be more painful after, the brace is painful as well, No comparison!! but mine has > been hurting, very painfully, for 3 months. I heard that the pain from > surgery only lasts 2 weeks-tops. Re-read all these posts from people who have had surgery, their pain now and on-going and the extra fusions, etc., etc., then say it's all over after 2 weeks. It's a lifetime! Dr. Ed in Tulsa For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Arinya N. Janes" Date: Wed, 1 Apr 1998 23:05:01 -0600 (CST) Subject: Pain Okay, I had surgery eight years ago. It was a posterior spinal fusion. The pain from the operation lasted about two weeks. I started having pain again, not from the operation itself, but the results of it. This doesn't apply to everyone though. Just be sure to ask your doctors is you will suffer from any pain from the results of the operation. I was twelve at the time and didn't have any clue as to what was going on. Generally, the doctors won't force you into anything that they feel would put you in any pain in the long run. Sometimes they don't know. It's not like they're gods and know everything. Just be sure you ask to know what you SHOULD expect. Because I was young, naieve, and scared, I didn't ask any questions. I had no idea that pain could ensue and now I have to go in for another operation in July. If you ask questions and know what to expect, then you won't have to deal with scoliosis like I have, nearly my whole life. I was diagnosed when I was six....now I'm going on 20. It doesn't have to be this way for any of you. For help on using this list (especially unsubscribing), send a message to "scoliosis-teens-request@ai.mit.edu" with one line of text: "help". ------------------------------ End of scoliosis V1 #784 ************************ You're reading a composite here: the scoliosis-digest is a daily encapsulation of messages sent to four different mailing lists: scoliosis, scoliosis-medical, scoliosis-child and scoliosis-teens. If you're responding, you can determine which list message above was posted to by looking at the message footer. To post your own email to scoliosis, send it to "scoliosis@ai.mit.edu". 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