From: bounce-scoliosis To: scoliosis-digest@ai.mit.edu Subject: scoliosis V1 #886 Reply-To: Errors-To: bounce-scoliosis Precedence: bulk scoliosis Sunday, 12 July 1998 Volume 01 : Number 886 Today's subjects for scoliosis, scoliosis-medical, scoliosis-child and scoliosis-teens: Re: stomachs, lungs, and spines [hmc ] Re: Pseudoarthrosis [Margaret Arth ] but I was too afraid to ask why ["Cyndi King" ] Kathy Stott, day 3 [Rufus Brown ] Query to adults who have had problems years after Harrington rod ["The Ka] Re: Bracing Results [Donna907@aol.com] Re: follow-up visit [hmc ] Copes braces [Lobo ] Re: Looking for a doctor ["Carla E. Barnett" ] Re: Copes braces [Silberkrmf@aol.com] ---------------------------------------------------------------------- From: hmc Date: Sat, 11 Jul 1998 10:47:56 -0600 Subject: Re: stomachs, lungs, and spines Thank you for relating Natalie's experience! This sounds very similar to me (except I'm 22, and have had this happen off and on for years!). I remember something mentioned about "fundus" before -- whether by my *wonderful* pediatriacian years ago or someone else, I don't know. But I do have a chiro I go to for joint problems (my hips, my shoulders, etc, are always getting injured, and he helps that very well) and I think I'll ask him about this . Thank you for sharing! - --hmc. ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Margaret Arth Date: Sat, 11 Jul 1998 05:45:24 -0400 (EDT) Subject: Re: Pseudoarthrosis Elizabeth, I went for 8 years with a fusion that never healed (unknown until last surgery). It was only from T12-L2, which is a very short fusion. But my surgeon felt that this was one of the reasons for my severe pain. With that nonunion, besides the pain, I developed arthritis, DDD, and ruptured discs as well as a broken rod and kyphosis. I really can't say if those would have happened anyway with a successful union, or maybe at least slow down the progression, or even if the nonunion CAUSED any of it. I guess there's no way to know. Anyway, I know you're having a really rough time right now, if there's anything I can do, just let me know. Take care. - --Megan ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Cyndi King" Date: Sat, 11 Jul 1998 08:17:59 -0400 Subject: but I was too afraid to ask why Elizabeth - You are one of the best contributors to the list and I admire and respect you. As a "cyber-friend" I must step in here and say I cannot believe you typed these words! You are so informed and have the gumption to go beyond the call to get recognotion from external sources for the condition we suffer. You are a strong, intelligent woman and, yes, we are entitled to our fears, but I'm officially kicking you in the pants =;->. Call him back on Monday please! Regards - CBK - ---------- > From: Elizabeth Mina > To: scoliosis-medical@ai.mit.edu > Subject: Pseudoarthrosis > ... ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Rufus Brown Date: Sat, 11 Jul 1998 08:55:50 -0400 Subject: Kathy Stott, day 3 Hello Everyone, I just rec'd an update from Kathy's husband. He said that each day does bring a little bit of improvement. Yesterday they had her sit up on the edge of the bed, which she did very well. Today they will have her do the same thing, and again tomorrow. On Monday they say they want to have her taking a few steps. She is still obviously in much pain from the surgery,but her husband thinks she has much improved. Kathy temporarily unsubscribed from the scoliosis lists just prior to her surgery. If anyone wants to send well wishes to Kathy, I receive the digest form of the lists. I will keep all of the mail to Kathy in a separate folder and deliver them to her when she returns home and is able to compute. It would be a really neat present to Kathy from all of us. Or, you may send her good wishes to me personally at marthaw@gointer.net. Please continue to keep Kathy in your thoughts and prayers. I will keep you posted. So far, it sounds like she is doing very well. Sincerely, Cathy with a "C" :-) ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-medical-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "The Kahn Family" Date: Sat, 11 Jul 1998 12:39:07 -0400 Subject: Query to adults who have had problems years after Harrington rod We are new subscribers. My wife is 40 and has had a Harrington rod since age 12, to the L4 level. She now has severe sciatic problems due to slippage and spinal stenosis, and the proposed surgery is fusion and reintsrumentation. We'd like to hear from anyone who has had this sort of massive revision and reconturing - how is the surgery, post-op pain, how long is recovery, what happens when you lose mobility from L5-S1 (can you clean yourself after going to the bathroom?), and who in the New York City area are the best surgeons for this? You can respond through the board, or directly to our home at kahnfamily1@msn.email.com, or to the husband (I'm a doctor) at kahndav@cpmc3.cpmc.columbia.edu. Many thanks for any advice and your experiences. ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Donna907@aol.com Date: Sat, 11 Jul 1998 13:43:05 EDT Subject: Re: Bracing Results My daughter also see's the doctor every three months.Six months does seem long ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: hmc Date: Sat, 11 Jul 1998 13:05:09 -0600 Subject: Re: follow-up visit Yea, Megan! Your follow-up visit is such wonderful news! When you say that your physiatrist is going to "knock down structures one by one" to figure out the source of your pain, what does that mean? I don't take it literally, but I've never heard that phrase before. And was your physiatrist assigned to you, or did you choose him? Thanks! - --hmc. ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Lobo Date: Sat, 11 Jul 1998 15:59:45 +0000 Subject: Copes braces For those of you considering the Copes brace, I applaud your decision as that direction is the best direction for true correction of scoliosis;however, there is an improved version of that type of brace on the market, it is about 1/2 the cost of his, price includes casting, and is fabricated by orthotists, not unsupervised lab techs. It is covered by more insurance companies and your treating physician can still maintain treatment control rather than be subserviant to Copes. E-mail me if you're interested. Dr. Ed in Tulsa--the"Curve-Mender" ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: "Carla E. Barnett" Date: Sat, 11 Jul 1998 21:04:26 -0500 Subject: Re: Looking for a doctor Andy, I have a question too. I am 45 and have a backward S curve of approx 40º both ways. My daughter has a 52º thoracolumbar curve. Since being on this list, I have learned that there are curves that progress into adulthood. Just met a former neighbor the other day that was told she was skeletally mature and not to worry about a 20º curve. She is 23 and it has already progressed to 45º. Why are doctors under the impression that curves do not progress? This obviously makes people ignore their health since most think they know what they're talking about. - ---------- > From: TseAndrew@aol.com > To: scoliosis@ai.mit.edu > Subject: Re: Looking for a doctor > ... surgeons in > this prestigous Scoliosis Research Society are the best in the field. I hope > it works out well for you and your family. > > Andy (new york city) > ... ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ From: Silberkrmf@aol.com Date: Sat, 11 Jul 1998 22:49:28 EDT Subject: Re: Copes braces Dear Dr. Ed, I am interested in hearing more Karen Silberkrmf@aol.com ______ For help on using this list (especially unsubscribing), send a message to "scoliosis-request@ai.mit.edu" with one line of text: "help". ------------------------------ End of scoliosis V1 #886 ************************ You're reading a composite here: the scoliosis-digest is a daily encapsulation of messages sent to four different mailing lists: scoliosis, scoliosis-medical, scoliosis-child and scoliosis-teens. If you're responding, you can determine which list message above was posted to by looking at the message footer. 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