From:      bounce-scoliosis
To:        scoliosis-digest@ai.mit.edu
Subject:   scoliosis V1 #988
Reply-To:  
Errors-To: bounce-scoliosis
Precedence: bulk


scoliosis                Wednesday, 21 October 1998     Volume 01 : Number 988

Today's subjects for scoliosis, scoliosis-medical, scoliosis-child
and scoliosis-teens:
  New to the List                                              [Deb8@aol.com]
  two weeks post-op!            ["Robin Murphy" <martians@star-telegram.com>]
  reconstructive surgery                    [cubfan@icss.net (John Hamilton)]
  Re: reconstructive surgery                                [Leah640@aol.com]
  Re: reconstructive surgery                                 [KRdazy@aol.com]
  Re: New to the List                                     [CarolPerk@aol.com]
  To Robin                                                [CarolPerk@aol.com]
  Mailing List                                             [BRETYBEN@aol.com]
  Hi                            ["Robin Murphy" <martians@star-telegram.com>]
  Re: scoliosis V1 #987               [Richard Lethin <lethin@reservoir.com>]
  1 day pre-op                          [Marla Dowdeswell <marla@net1fx.com>]
  14 Weeks Post-Op                            [Cyndi King <cbk.skk@home.com>]
  Spasms                              [Diana Laurent <dlaurent@stanford.edu>]
  Re: scoliosis V1 #987   ["Dean A. Hoppenrath, DC" <drdean@interaccess.com>]
  atardif@ctel.net                         ["Mike Tardif" <atardif@ctel.net>]
  scoliosis and the Milwaukee brace  [Connie Edwards <gibibl@interaccess.com]
  Judy Wall surgery successful               [Dean Wall <dean@believers.org>]
  [none]                                     [KKRUGER@ddiworld.com (KKRUGER)]
  NSAID                                    [ianjan <ianjan@alphalink.com.au>]
  Re: NSAID               ["Dean A. Hoppenrath, DC" <drdean@interaccess.com>]
  Re: NSAID                           [Diana Laurent <dlaurent@stanford.edu>]
  Re: NSAID                                      [hmc <delirium@getaway.net>]
  Robin's Exactomundo! remark                    [hmc <delirium@getaway.net>]
  Re: scoliosis and the Milwaukee brace                  [HugEBear36@aol.com]
  Re: NSAID                                              [HugEBear36@aol.com]
  Re: NSAID               ["Dean A. Hoppenrath, DC" <drdean@interaccess.com>]
  For Marla, after Surgery                       [hmc <delirium@getaway.net>]
  Hiding the Brace :o                    ["zOnly One" <zonlyone@hotmail.com>]
  Re: two weeks post-op!                [Kathy Mayhall <cabana6250@home.com>]
  Re: reconstructive surgery            [Kathy Mayhall <cabana6250@home.com>]
  Re: NSAID                                              [Lildagover@aol.com]
  Re: Jennifer & MRIs               ["Jennifer Wright" <JWANDBA@prodigy.net>]
  Re: scoliosis V1 #987                 [Kathy Mayhall <cabana6250@home.com>]
  Re: Jennifer & MRIs                     ["Gail Walsh" <gwalsh@nbnet.nb.ca>]
  Re: Hiding the Brace :o                                 [richa@softcom.net]
  Re: Jennifer & MRIs              [Linda Racine <lindaracine@earthlink.net>]

----------------------------------------------------------------------

From: Deb8@aol.com
Date: Tue, 20 Oct 1998 03:31:08 EDT
Subject: New to the List

My 14 year old daughter is supposed to have surgery on November 10th.  She has
a 47 degree thoracic curve and after 15 months in a "Boston" type brace it is
actually a few degrees worse than before the brace.  Her doctor is Dr. Michael
Tanner in Tulsa, Oklahoma, has anyone here heard of him?  Is there any way to
check on a doctor's surgical record?  After reading some of the mail on this
list, I feel that I know very little about this surgery.  Her doctor said that
she would have a 1' incision down her spine and a 3" horizontal incision
across her hip, that the surgery would last approximately 5 hours, and that
she would be out of school for 4 to 6 weeks.  He also wanted her to donate one
unit of blood for her surgery, is this the normal amount to donate, is one
unit normally enough for a 5 hour surgery?  I am getting more nervous about
this every day, any help would be greatly appreciated.
Debra

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From: "Robin Murphy" <martians@star-telegram.com>
Date: Tue, 20 Oct 1998 04:47:58 -0500
Subject: two weeks post-op!

Today I am two weeks post op.  It is 4 am in the morning.  Somehow this part
has not changed.  That's the part where I wake up at 3-4 am in pain and it
takes a while to settle back in.  I just got through reading yesterday's
digest and wish I could go sit with Marla and keep her company for a while.
My prayers go out to her.

I am getting a bit stronger every day.  I do not use my walker around the
house anymore.  I was supposed to start walking outside yesterday but it got
delayed until today.  So today I hope to start taking short walks around the
yard and neighborhood.  I can finally watch TV and read a book without
falling asleep after only a few minutes.  I am starting to get restless
every once in a while from all of the enforced inactivity.

Not being able to lean over and pick things up (especially off the floor) is
proving to be slightly frustrating.  It is even more of a challenge to
figure out how to pick things up.  Even without the weight restrictions I
would have trouble picking things up that are too heavy.  I am not able to
sit up for very long either.  Yesterday, I finally got all of the digests
read from the last two weeks.  I sat up too long and had muscle spasms most
of the evening.  The heating pad helps some.  I am definitely going to talk
with the doctor on Thursday about maybe a different muscle relaxer.  I seem
to have at least once (ot twice) a day where the muscle spasms get pretty
rough.  Especially in the evenings.  And at 4 am in the morning.

I think I am still a bit scatter brained (at times) especially when I take
the muscle relaxers and pain pills at the same time.  But overall every day
gets a little better.   I have lots of sores and bruises from the IV's and
surgery that are healing.  I had a bunch of tape burns on my legs, neck,
face, and arms.  Anywhere they used tape to strap something down, I ended up
with a sore.  These are healing well with the help of a bit of antibiotic
ointment.

I saw KMayhill's note on her frustration with trying to work with back pain.
I can sympathize.  My boss was none too happy with me when I left because of
all the time off I took due to my back pain.  Although he is not supposed
to, he was trying to rate my performance down due to the absences.  My work
was OK, I just got less done because I was working fewer hours.  It is
something I will have to deal with when I go back to work since I intend to
only start out at part-time and work my way back to full time as my health
allows.

Time to go as I have already been sitting upright in this chair entirely too
long and the muscle spasms are starting to get really nasty.

Robin

I have also finally started eating some and find I am not as tired.  My
three teenagers have also started getting the knack of things and at least I
am getting fed.  Of course they are not as good at keeping up with the
housework but one thing at a time.  My parents left Thursday or Friday after
they made sure I was getting around OK.  I am a bit worried about them since
Dad called me from Corpus Christi and told me that had to lay over a night
for repairs to their motor home.  Here in Texas there is severe flooding
going on in South Texas and that is where my folks went.  I am hoping that
they cut their trip short down there and headed on over to Arkansas.


I was looking for some current news on Ben's surgery from Mary.  I must have
missed it.  Has anyone heard from Mary lately and how is Ben doing?



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------------------------------

From: cubfan@icss.net (John Hamilton)
Date: Tue, 20 Oct 1998 06:16:30 -0500
Subject: reconstructive surgery

Hi
I am having "reconstructive scoliosis surgery in december.I had surgery
21 years ago already.  I now have flat back syndrome and with sagittal
plane decompensation and degenerative disc disease at L5/S1.The surgery
they will do will realign my back to relieve some pain.  This is a two
operatition procedure. I also have a broken harrington rod.  They will
be using the different screws and rods that they didnt use the first
time. If anyone has had this kind of surgery please let me know.  Im
wondering whats down the road for me.  I had no problems with my first
surgery, but I was l6 then and now am 37.  Im not really worried I knew
this was comming for along time but Im still a little scared.  I know I
should be better afterwards.  I have 3 small children and will be able
to take better care of them after all said and done. That is what I am
hopeing.  Am I right? It is so nice to know there are others out there
that feel the way I do.  Its hard to explain to people the pain if you
dont have this disease.

Tina

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From: Leah640@aol.com
Date: Tue, 20 Oct 1998 08:33:15 EDT
Subject: Re: reconstructive surgery

Tina,
    Find out what kind of rods and screws they are using. Some are better than
others. There is a lawsuite on the pedicle screws out there for faulty use in
the spine. I had my fusion back then too and am hoping to avoid more surgery.
Mine was done at Columbia Pres. in NYC by Dr. Hugo Kiem. It will be 25 years
this month. Mine was done on my parents 20th wedding anniversary so I never
forget the date.
Leah

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From: KRdazy@aol.com
Date: Tue, 20 Oct 1998 09:38:59 EDT
Subject: Re: reconstructive surgery

what is the cause of degenerative disk disease?   kr

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From: CarolPerk@aol.com
Date: Tue, 20 Oct 1998 10:01:13 EDT
Subject: Re: New to the List

All sounds about right for a girl her age.  I donated 3 units of blood,
although the doctor only used one,  the others served as a back up for any
post-surgical blood related problems.  Fortunately none were needed.  I was 45
at the time of surgery.

C.P.

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From: CarolPerk@aol.com
Date: Tue, 20 Oct 1998 10:06:55 EDT
Subject: To Robin

I used What I referred to as a "grabber" to pick things up off the floor for a
good two months, minimum.  It's a long rod with a trigger in the handle and a
grabbing apparatus at the end.  It was a life saver.  You can get one at a
medical supply store.

C. P.  

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From: BRETYBEN@aol.com
Date: Tue, 20 Oct 1998 10:21:33 EDT
Subject: Mailing List

Hi,
I am a 43 year old female who had surgery in 1969 for a 40 degree curve. It
was performed at the Mass. Hospital School in Canton. I am doing fine, but I
have been worried about my 8 year old son since he was 3. I requested an x-ray
from our pedi and last week we found he has a 10 degree curve. I realize that
is small, but I am a nervous wreck about his future growth and what it will do
to the curve. I would like any info treatments of children in this age group
with mild curves. I would also like to be put on the mailing list. 

Thanks for your help
Denise

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From: "Robin Murphy" <martians@star-telegram.com>
Date: Tue, 20 Oct 1998 10:06:12 -0500
Subject: Hi

marla,

my name is Robin and I am assuming that you had your surgery this morning.
So I will understand if it is a few days before you get back to me.  I had
my surgery on Oct 6th.  My surgery was done in Dallas, TX.    I hope that
all went well for you.  Don't be surprised if you are very sore and bruised
for a few days. (weeks actually).  The morophine pc pump will keep you
feeling slightly confused.  I had some other side effects (mainly nausea and
a lot of disorientation) so I had to quit the pc pump.  My father is
allergic to morophine so i was surprised that i tolerated the morophine as
well as i did.

I, too, had both scoliosis and spondylolithesis.  The spondylolithesis would
cause mostly problems in the hips and legs, shooting pains, trouble standing
or walking, any moving around.  You needed to have that fixed because some
day if that vertebrae were to shift too far they would have to eventually
fuse it anyway.  Otherwise it would cause some permanent nerve damage.  I
have had cortisone shots and went through a year of problems with my
spondylolithesis.  When I was 26 the doctors told me that if the
spondylolithesis ever got to the point of needing surgery then I would want
to consider having the whole back done.  They also suggested that I could
get the spondylolithesis fixed without the scoliosis surgery but not to have
the scoliosis surgery without the other.

I did not catch your age.  I am 42 and the pain had gotten increasingly
worse over the last  16 years.  I could tell when the pain was associated
with the spondylolithesis because it was different and affected mostly my
legs, hips, and lower back.   My back pain with the scoliosis was mostly
with the waist and up.  My left side was a bit shorter than the right so the
combination caused all kinds of problems.

I have a double major curve of  58/40 degrees.  They reduced some ribs on
the right side.  The rib hump never bothered me as much as my "wings"
(scapulas).  My scapulas always flared out and I never looked straight.  I
just looked like I had bad posture and could never sit still.

I go to the doctor on Thursday and will get the final results from the
surgery.  Somewhere in the process of getting out of the hospital I did not
get or do not remember the details of the corrections.  Even though they did
not correct the upper curve as much as I had hoped I can see the difference
in the scapulas and the rib hump area.  I am looking forward to physical
theraphy so I can find out just how much difference the surgery really made.

right now it is raining here and i can tell where the doctor operated.  The
ribs especially.  I could probably draw you a picture of every screw, rod,
and cut just from the aches and pains.  I can tell that i should be quite
good at predicting weather in the future.

One of the things that the doctors told me was that I had several genetic
anamolies in my spine.  The S5/L1 has some kind of extra hooks on that
vertebrae.  I have an extra set of ribs and the bottom two sets are
underdeveloped.  He said that I was probably born with the spondylolithesis
also.

I am getting tired from sitting up for too long so I must go.  Keep writing.
I think everyone here can relate in some way to your situation.  I know that
it makes me feel better when I see that a lot of the aches and pains I am
experiencing are not "just in my head".   The advise, support, and just
plain caring from people who really do understand what I have been through
has been an immense help.  Being able to compare notes and information makes
me feel like I am just a bit more in control than when I just hurt and no
one can tell me why.

Robin



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From: Richard Lethin <lethin@reservoir.com>
Date: Tue, 20 Oct 1998 09:19:28 -0700
Subject: Re: scoliosis V1 #987

> From: Kate Hauer <KHAUER@tnrcc.state.tx.us>
> Date: Mon, 19 Oct 1998 14:42:40 -0500
> Subject: Re: "Rib" humps -Reply
> ...

Maybe.   But isn't the X-files a fictional drama?

Plenty of doctors make money on braces.

> I know surgery is the only answer for many.
>  I have heard so many good things about the Copes system on this list, I
> would hope the people in the position to try bracing would look into every
> ...

And I hope people will read www.quackwatch.com as they explore and try to understand the alternatives and their patter.

>
>
> Why do you think there is no National health care system?  because the
> ...

Or, maybe it's because the current system is what has encouraged the investment that makes the capabilities of our medical system the envy of the world.

Where is the long-promised peer-reviewed paper on Copes showing efficacy advantage over other braces?   When that comes out, you'll see the medical community take notice.



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From: Marla Dowdeswell <marla@net1fx.com>
Date: Mon, 19 Oct 1998 23:12:46 -0600
Subject: 1 day pre-op

- ------ =_NextPart_000_01BDFBB6.6E7198C0
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I can't believe how much has happened in this day.

I promise this is my last post on this subject.  It's now after midnight =
and officially Op-Day.

I did the enema thing.  It wasn't bad at all.  No one says anything =
about it, so I really feared it.  Even the nurse wouldn't give me a =
direct answer to my questions.  So for everyone else like me who =
wonders, I'll explain it.  You get a small plastic bottle with a spout =
on top, there is about 150 mL of liquid inside.  You poke the spout =
inside your hiney and squeeze.  You can't even feel the fluid going in.  =
You wait and "hold it in" for 2-3 minutes, it takes a small amount of =
effort to hold it in.  Then you release and have a normal bowel =
movement.  I sat on the can a few minutes longer just in case anything =
came out (and it did).  The whole process took less than 10 minutes.

I had the iodine shower.  The soap was dark brown like iodine, but it =
was also sudsy like soap.  The soap bubbles were yellow.  I was afraid =
it would stain my skin, but it didn't, it all washed away.  The bad =
thing is that it stained my jewellry.  My gold turned an orangy-brassy =
colour and my silver tarnished a dull gray-yellow.  I think that both =
will be able to be cleaned though.

At 11:30 my nurse Sheila left.

At midnight my new nurse, Leslie came in.  She took away my water and =
told me that the surgery had been changed to 8:00, so they would wake me =
up at 6:00 and give me the valium at 6:30, they would take me to the OR =
at 7:30.  I asked if the valium could be given later, since I didn't =
want to be groggy for too long, but she said they like to give it 90 =
minutes beforehand.  I suppose that she couldn't make a decision to =
change it anyway.  But since I had the option of not having it at all, I =
don't see why I don't have the option of what time to take it.

I called Mom and Dad to tell them that the time had changed and they =
were already asleep!  It's only 10:00 in our time zone, it seems unfair =
that they are asleep and I'm not.  I'm glad I wasn't asleep though, they =
probably wouldn't have woken me up to tell me the time had changed and =
then I wouldn't have been able to tell my parents.  I don't think I'll =
sleep much tonight at all, maybe listening to some music will help =
(thanks again for the suggestion to bring the CD player).

I think the decision to change my surgery from T9-L5 to L4-S1 was a good =
one, but I am concerned that he is treating only the spondylolysthesis =
and not the scoliosis.  I know that most of the pain I experience now is =
due to the spondylolysthesis, but I know that I had scoliosis pain =
before because it was in a different location.  I hope that the =
scoliosis pain is bearable after surgery and in the years to come, =
because I think that if I had another fusion to treat the scoliosis then =
I would have other problems associated with such a long fusion to the =
sacrum.

I haven't paid much attention to previous posts on short fusions or =
sacrum fusions because I didn't think they applied to me.  Can anyone =
offer any info on fusion from L4-S1, recovery time? pain level? future =
complications?

Marla
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From: Cyndi King <cbk.skk@home.com>
Date: Tue, 20 Oct 1998 09:16:42 -0400
Subject: 14 Weeks Post-Op

Read posts from Marla and Linda re: Nancy this morning.  All the best wishes and prayers
from me to you today.  Also to others having or had surgery this week.

I had a wonderful compliment from the water physical therapist last Thursday.  She came
over to me in the pool while I was warming up and told me that I was such an inspiration
to the group.  She said the personality of the whole group has changed (for the better)
since I joined in September.  The other patients have different ailments and realized how
far I had come after I was allowed to stop wearing the brace on 10/5.  When I came to the
pool on 10/6 in my swimsuit the incision scar was very noticeable.  It is healing very
well, but it is 16 inches long down the center of my back.  All of the other patients
could see it and it made quite an impression on them.  I guess while I was gone for the
10/8 & 10/13 sessions they all asked Laurie, the PT, about my surgeries and came to a
group consensus that I was pretty amazing.  Somehow their own ailments became a little
less to them.  I want to thank you all for giving me the courage to have this surgery and
for maintaining my confidence during the recuperation.  I gain so much from this list that
I am able to go out into the world each day and perhaps inspire others.

Regards, 

CBK



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From: Diana Laurent <dlaurent@stanford.edu>
Date: Tue, 20 Oct 1998 09:39:03 -0700
Subject: Spasms

This is a real simple and obvious thing, but I find that a lot of people
who complain of muscle spasms, especially in the legs, are chronically
dehydrated and don't realize it (I work in rheumatology).  I tell them to
increase their water intake and see if it helps.  Quite often it does,
especially for folks on diuretics or blood pressure medications.

Worth a try for those of your having this problem.

Diana


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From: "Dean A. Hoppenrath, DC" <drdean@interaccess.com>
Date: Tue, 20 Oct 1998 14:22:21 -0500
Subject: Re: scoliosis V1 #987

I have only one thing to comment on with this reply and its not the copes
stuff (I too would like to see some studies)...

It is Richard's referancing the "quackwatch" site.

This is not an informational site, it is a witch hunt site.  The man in
charge of it is a retired MD by the name of Dr. Stephen Barrett.  He has a
personal vendetta against all things alternative.  His theories are flawed
but never questioned by the same standards that he asks you to question
alternatives.  Just a few weeks back he was featured as an expert on
Dateline NBC in a story about hair analysis.  He stated that he was a
specialist in this field (which he is not)  He also sent in a mixture of dog
hair to be analysed and marked the sample as being human.  when the report
came back as showing a decrease in thyroid function and low leavels of most
minerals, Dr. Barrett stated that the hair analysis was totally flawed
(because the dog was healthy).  But as we all know, dogs and humans do not
have the same physiology and since he purposfully put "human" on the sample,
there was no way to determine that it was actually a healthy dog.

It is these types of methods that Dr. Stephen Barrett uses and then turn
around and says "see they are quacks".  He has yet to admit that
chiropractic is the most effective treatment for back pain (even though
study after study shows this to be true).

Richard, you are right, this is not X-Files.  But, in the real world, many
people use false hoods to advance their own personal belief, regardless of
facts.

Dean A. Hoppenrath, DC



>> I know surgery is the only answer for many.
>>  I have heard so many good things about the Copes system on this list, I
>> would hope the people in the position to try bracing would look into
every
>> alternative.
>
>And I hope people will read www.quackwatch.com as they explore and try to
understand the alternatives and their patter.
>
>>



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From: "Mike Tardif" <atardif@ctel.net>
Date: Tue, 20 Oct 1998 15:48:20 -0400
Subject: atardif@ctel.net

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From: Connie Edwards <gibibl@interaccess.com>
Date: Tue, 20 Oct 1998 14:42:00 -0700
Subject: scoliosis and the Milwaukee brace

My 13-year-old daughter, Carrie, was diagnosed with scoliosis at the age 
of five. Until this summer we lived in Germany where they prescribed 
physical therapy. Now that we are here, the doctor has saidd she needs a 
brace right away. Her cervical curve is 32 and her thoracic is 24 
degrees. I am a single mom and plan to get a second opinion but from 
reading I am beginning to suspect the doc here is correct in his 
assessment. Since we are new insurance holders, there is no coverage for 
this pre-existing condition.I would appreciate any information or simply 
support. Thanks. Cononie Edwards gibibl@interaccess.com

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From: Dean Wall <dean@believers.org>
Date: Tue, 20 Oct 1998 15:50:02 -0500
Subject: Judy Wall surgery successful

Greetings,

Judy Wall finished the second part of her back surgery today just a
little bit ago. Total surgery time (both days combined) was about 14
hours. The doctor reports that all went very well and there were no
problems.

Judy is doing well, but will be heavily medicated for awhile, so I do
not encourage phone calls. However, all emails will be read to her.
Also, her room is already filled with flowers, so more will not be
necessary.

Should you desire to send a card the address is:

Judy Wall, Room #7104
Barnes-Jewish Hospital South
One Barnes-Jewish Hospital Plaza
St. Louis, MO 63110

Thank you for all your prayers and good wishes.

Dean Wall



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From: KKRUGER@ddiworld.com (KKRUGER)
Date: Tue, 20 Oct 1998 17:32:08 +0100
Subject: [none]

     Hi everyone,
     I'm new to the list and would like to comment briefly on the Copes 
     brace because I've read so much discussion about it here. From age 12 
     to 16 I wore a milwaukee brace. It corrected my curves successfully, 
     but to make a long story short the curves started to worsen around age 
     31. This was likely due to a variety of factors including long term 
     use of birth control pills, severe lack of protein in the diet, etc. 
     I'm sure someone out there will ask about that but I won't go into it 
     here. My ortho. surgeon recommended surgery (I'm 35 now) but I opted 
     for the Copes brace. I got it the last week of May of this year. On 
     Sept. 17th I had x-rays taken.  My lumbar curve has decreased from 49 
     to 39 degrees.  My thorasic curve is down from 41 to 36 and the top 
     curve (going into my neck) is down from 21 to 5 degrees. Not bad for 4 
     months. Actually, I'm ahead of the game because as I understand it the 
     average correction is 1 degree per month.  The differences between the 
     Copes brace and the Milwaukee are many, but they work on the same 
     basic principal of pushing with pads to achieve correction. I'm not 
     sure how long these messages are allowed to be so I won't go into the 
     differences between the braces here. But if anyone out there would 
     like my thoughts, please ask. I think I'm Dr. Copes' only patient who 
     has worn both kinds of braces, but I may be wrong.  Any one else out 
     there have a similar story?  I'm glad this site is here and very happy 
     to "meet" all of you!  Best wishes in whatever course of treatment you 
     are pursuing!!!  To A.K.-thanks for cluing me in on this!
     KAT.

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From: ianjan <ianjan@alphalink.com.au>
Date: Wed, 21 Oct 1998 07:59:32 -0700
Subject: NSAID

Can someone please explain to me what an NSAID is?
Thanks,
Ian
Melbourne, Australia

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From: "Dean A. Hoppenrath, DC" <drdean@interaccess.com>
Date: Tue, 20 Oct 1998 17:36:38 -0500
Subject: Re: NSAID

N on-
S teroidal
A nti-
I   nflamatory
D rug

Or the likes of Tylonol, ibuprofen, naproxin.

Dr. Dean


- -----Original Message-----
From: ianjan <ianjan@alphalink.com.au>
To: scoliosis@ai.mit.edu <scoliosis@ai.mit.edu>
Date: Tuesday, October 20, 1998 5:16 PM
Subject: NSAID


>
>Can someone please explain to me what an NSAID is?
>Thanks,
> ...


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From: Diana Laurent <dlaurent@stanford.edu>
Date: Tue, 20 Oct 1998 16:01:48 -0700
Subject: Re: NSAID

At 07:59 AM 10/21/98 -0700, you wrote:
>
>Can someone please explain to me what an NSAID is?
>Thanks,
> ...
"non-steroidal anti-inflammatory drug" - aspirin in higher doses (but not
Tylenol), Motrin, Naprosyn, Relafen, DayPro, Voltaren, Feldene, etc.  There
are many.  They are designed to treat inflammation, but also are used just
for pain with no inflammation.
Diana

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From: hmc <delirium@getaway.net>
Date: Tue, 20 Oct 1998 18:32:01 -0600
Subject: Re: NSAID

Is Tylenol a NSAID? I cannot take ibupfrofen, naproxin, etc., but the
same Dr. that advised against NSAIDs said that Tylenol was my best bet.
Or aspirin, if I wanted.
Therefore, I was under the impression that Tylenol was not an NSAID. Was
I mistaken?
- --hmc.

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From: hmc <delirium@getaway.net>
Date: Tue, 20 Oct 1998 18:49:17 -0600
Subject: Robin's Exactomundo! remark

Robin Murphy wrote:
 Being able to compare notes and information makes
> me feel like I am just a bit more in control than when I just hurt and no
> one can tell me why.

Amen, Robin! Precisely how I feel and why I find this list such a huge
help. SHaring opinions, information, and moral support make this list so
rewarding to be a part of. Thanks, you guys!
- --hmc.

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From: HugEBear36@aol.com
Date: Tue, 20 Oct 1998 20:29:01 EDT
Subject: Re: scoliosis and the Milwaukee brace

 This is in response to no insurance or pre-existing condition.  Shriners
Hospitals
are all over the US and do not require payment from anybody weather you can
pay or not.  Shriners hospital is for children and its free.  Hope you get
this
message.

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From: HugEBear36@aol.com
Date: Tue, 20 Oct 1998 20:34:38 EDT
Subject: Re: NSAID

check back a few e-mails and you will see

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From: "Dean A. Hoppenrath, DC" <drdean@interaccess.com>
Date: Tue, 20 Oct 1998 19:44:56 -0500
Subject: Re: NSAID

My fault, your right tylenol is NOT an NSAID.  (Technically it is not a
steroidal but not really a NSAID)

- -----Original Message-----
From: hmc <delirium@getaway.net>
To: scoliosis@ai.mit.edu <scoliosis@ai.mit.edu>
Date: Tuesday, October 20, 1998 7:01 PM
Subject: Re: NSAID


>
>Is Tylenol a NSAID? I cannot take ibupfrofen, naproxin, etc., but the
>same Dr. that advised against NSAIDs said that Tylenol was my best bet.
> ...


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From: hmc <delirium@getaway.net>
Date: Tue, 20 Oct 1998 18:43:39 -0600
Subject: For Marla, after Surgery

I know you are going to be groggy, even when you do get around to
reading this, but I just wanted to tell you my good thoughts are with
you today (Op-day!) and as you recover.
	Thank you for the blow-by-blow of your Pre-Op days and for covering
(tackfully! ;*) some things we had never mentioned on-list before.  Keep
up posted, whenever you feel up to it.
Be well.
- --hmc.

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From: "zOnly One" <zonlyone@hotmail.com>
Date: Tue, 20 Oct 1998 22:47:55 EDT
Subject: Hiding the Brace :o

Hey everyone!!!

I just got my brace yesterday, and I'm already finding loads of trouble 
with my waredrobe. What do you guys wear to hide your brace? 

zOnlyOne




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From: Kathy Mayhall <cabana6250@home.com>
Date: Tue, 20 Oct 1998 23:28:41 -0400
Subject: Re: two weeks post-op!

Robin this has nothing to do with you...I just wanted to tell you that
when I got home after having a rod placed from the top of my spine to
the bottom..I had no spasms and only felt weak..two week after surgery I
was driving and went to the mall with my sister..I still felt week but I
never took a pain pill, but Tylenol when I got home..why is everyone so
painful when they come home??? I had no feeling in my back and I had two
60 degree curves they where only able to get them to 20 degrees after
surgery...I just do not understand..Why all the pain???? 

Robin Murphy wrote:
> 
> Today I am two weeks post op.  It is 4 am in the morning.  Somehow this part
> has not changed.  That's the part where I wake up at 3-4 am in pain and it
> ...

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From: Kathy Mayhall <cabana6250@home.com>
Date: Tue, 20 Oct 1998 23:30:59 -0400
Subject: Re: reconstructive surgery

Leah

Did you have all this pain when you came home..like the others are
talking about..we had our surgery about the same time..???

Leah640@aol.com wrote:
> 
> Tina,
>     Find out what kind of rods and screws they are using. Some are better than
> ...

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From: Lildagover@aol.com
Date: Tue, 20 Oct 1998 23:18:37 EDT
Subject: Re: NSAID

Non-steroidal anti-inflammatory drug.

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From: "Jennifer Wright" <JWANDBA@prodigy.net>
Date: Tue, 20 Oct 1998 21:12:24 -0600
Subject: Re: Jennifer & MRIs

Dear Alyssa,
I can't tell you the number of times that I have been told by surgeons and
radiologists that I cannot have a MRI due to the hardware in my back.  I
did read on this list (I think from Allison) that a very skilled
radiologist could still do a MRI on me, but when I have asked medical
personnel about this, I was told it was not possible.  I have an abundance
of hardware in my lumbar region, so perhaps that makes a difference.  Since
I am facing another myelogram and  am now fused fromT3-L5 which means they
will have to inject the dye in a cervical disc..........I would certainly
want a MRI.  I will keep trying to see if it is possible in my case. 
Thanks.    Jennnifer

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From: Kathy Mayhall <cabana6250@home.com>
Date: Tue, 20 Oct 1998 23:39:53 -0400
Subject: Re: scoliosis V1 #987

FACT....I went to a Chiro for 1 full year, at 3 times per week..he
claimed to know alot about scoli..and he was going to make my scoli.
stop or improve 50 percent..I went every week...well nothing..I got
worse from the manupulations.....I would cough and my back would go
out...just 2 months after seeing him..it was so much worse I could not
even tell you..You chiro maybe good for headaches but you can forget
this..it is way beyond your 4 year degree..
Dean A. Hoppenrath, DC wrote:
> 
> I have only one thing to comment on with this reply and its not the copes
> stuff (I too would like to see some studies)...
> ...

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From: "Gail Walsh" <gwalsh@nbnet.nb.ca>
Date: Wed, 21 Oct 1998 00:49:17 -0500
Subject: Re: Jennifer & MRIs

Jennifer,

I thought I would add my two cents worth re: the MRI. I have Harrington
rods and this past year had an MRI without any problem at all. It was the
first time I had undergone the test and had some concerns but other than
the clautophobia of being in a confined space, all went well!

Maybe you should discuss it with your doc. My rods cover the entire
thoracic area.

Good luck!

Sincerely,

Gail





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From: richa@softcom.net
Date: Tue, 20 Oct 1998 20:49:01 -0700
Subject: Re: Hiding the Brace :o

zOnlyOne,
        I used to wear a brace.  ONly have to wear it at nights now.  ONly
had to wear it for 'bout.....um.......5 months total.  I had to wear it to
school also.  I didn't wear anything to hide my brace at all!  My friends
already knew about it, I go to a private school, and they were pretty kind
to me.  I didn't hide my brace.  It wasn't until the 5th month of wearing
it when I reached to my back to itch myself, when I noticed that my brace
stuck out of my back that much!  No wonder so many kids were asking ,
"What'z that hump on your back?"  I heard that wearing a jacket with a hood
helps.  Don't worry!  God is with you!  He'll help you through everything!
You can ask me anything about the brace, hopefully i'll be able to answer
all of your questions.  I wore a minnesota brace 23 1/2 hours a day!  Bye!
				Reece

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From: Linda Racine <lindaracine@earthlink.net>
Date: Tue, 20 Oct 1998 21:03:38 -0800
Subject: Re: Jennifer & MRIs

Hi all...

 I found the following Medline reference, that [hopefully] will answer the
question as to whether MRIs are possible, and worthwhile, after spine surgery
with instrumentation:

TITLE: Metallic artifacts in magnetic resonance imaging of patients with
spinal fusion. A comparison of implant materials and imaging sequences.

AUTHOR: Rudisch A; Kremser C; Peer S; Kathrein A; Judmaier W; Daniaux H
 
AUTHOR AFFILIATION: Department of Radiology, University Hospital of Innsbruck, Austria.
 
SOURCE: Spine 1998 Mar 15;23(6):692-9
 
CITATION IDS: PMID: 9549791 UI: 98210960

ABSTRACT: 
STUDY DESIGN: Devices for spinal fusion were compared with
respect to their influence on magnetic resonance images. In addition,
different magnetic resonance pulse sequences were evaluated to elicit
their susceptibility to imaging artifacts. OBJECTIVES: To determine
the implants with the least imaging artifacts as a recommendation for
the spine surgeon and to assess the best imaging strategy for the
radiologist. SUMMARY OF BACKGROUND DATA: For patients who
have had surgical spinal fusion with instrumentation, magnetic
resonance imaging is the most favorable diagnostic method.
Unfortunately, metallic implants lead to severe degradation of image
quality. These artifacts depend on the material of the implant and on
the choice of the pulse sequence. METHODS: The fusion devices
were mounted on a simple plastic phantom in various combinations
and were imaged on 1.5-T magnetic resonance units. Frequently used
types of plates and screws made of titanium or steel in various alloys
were examined on the phantom with routinely used pulse sequences.
The results of these examinations were compared with those in patient
studies involving the same implants as well as the same pulse
sequences. RESULTS: The least imaging artifacts were caused by
titanium implants, especially when using shorter screws, wider screw
placement, and thinner titanium plates. Nevertheless, there were
distinct image distortions that could lead to erroneous image
interpretation. The best images were acquired by spin echo (T1),
turbo spin echo (T1, T2), and half Fourier single shot turbo spin
echo (HASTE) sequences. Sequences containing any gradient echo
components (gradient echo or turbo gradient and spin echo sequence
or frequency- selective fat saturation techniques) resulted in the
highest amount of image degradation. CONCLUSION: By choosing
appropriate spinal fusion devices as well as pulse sequences,
postoperative magnetic resonance imaging examinations can give
acceptable results, in spite of the presence of metallic implants.



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